| To: [email protected] From: [email protected] | Block Address | Add to Address Book Date: Mon, 19 Feb 2001 21:56:45 EST Reply-to: [email protected] Subject: [FGF] Jason Update Dear Listmates: The List has been really busy lately. I have waited to report the results of our son Jason's visit to Dr. Aguilar at the begining of the month. Jason's case is interesting in regards to the effectivness of FGF2 because FGF2 is his only treatment for the last three years. Jason has been under FGF2 treatment for 3 years- 4 months. His last injection was four months prior to our visit. The first visit diagnosis (August 1997) was developmetal delay of about 25 percent in all areas. Of there was long history to Jason's delays. He was diagnosed at age seven months with worse delays and we believe the cause was possibly due to over dosage of oxygen at birth. In practical terms at age 10 when he started treatment with FGF2 at age he had the developmental skills of an 8 year old. In comparision to many of Dr. Aguilar's patients this could be considered a mild case. Dr. Aguilar's first visually evoked potential EEG test showed that Jason's brain had some areas that were not working very well. Dr. Aguilar stated at that time that he believed a 100 percent recovery was possible. Jason is now functioning in the middle of normal range in all areas and little ahead in a few. He plays soccer with 14 year olds and does o.k.. He scored in the 60 percent range on the state school test, although he is one year back (6th grade) in school. However, the class is very bright (average test scores in the 80th percentile) and Jason is keeping up easily. Dr. Aguilar stated at our visit that Jason is "cured" and "he is going to have a normal life". He also said that further progress is still possible. We are going to resume treatments at reduced dosage in three months, continue for six months, stop for four months, and then repeat the EEG tests (with the new equipment). It is expected that after that there will be one more six month period of treatment and then we are finished. Jim Dunham |