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| 12/22/2005-Updated 04/11/2008 More letters from 'The Fibro Angels' |
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| Hello I to have fibro after a fall at work that left me with two herniated disc and fibro, am applying for ss have been turned down twice have a lawyer now. I also have severe depression. I feel useless not working and feel my husband doesn�t understand! He always says I hurt to but I have to keep working. He drinks a lot, and if I say are you saying that I should try going back to work he says no but yet will still say little sarcastic things then act like he meant something else. I know there are many women in the same boat! So glad I came across your web site,. Lxxx
Hello was wondering what kind of work were you doing when you became disabled and what happened when things first started happening ? Ive talked to people that were diagnosed with fibro and look at me like Im crazy when I tell them I couldn�t even walk to the bathroom without hanging on to the furniture even the dr unfortunetly I didn�t go to the dr until after that I didn�t want to get out of bed my husband even treated me in different . that was a year and a half ago I of course kept calling in sick the last day I was at work I was working at walmart in the fitting room on lite duty! and the pain was all over I couldn�t button the clothes the pain was everywhere it felt like someone had taken a hammer to me, I sat down with a line full of custmers and just cried was strange the first blood test showed a positive ana and a very low rhuimetoid factor but then I was sent to a rhumetologist and the test all came back negative from then on, strange but I have no turning joints etc also had a couple of high sed rates but only a couple so they say I probably also have some kind of arthritis along with the fibro also told by my family dr I might be biopolar but when ss sent me to a psyciatrist he said no severe depression would like to read what he really wrote wonder if I can get a copy of that report? SS is saying that my mental problems do keep me from being able to do any work with intense instruction or lifting but that I could sit and do reception work like I did years ago the thing is I cannot sit for very long due to herniated disc two at l4 and l5 s1 even typing you Ive had to get up several times! also cramping in my hands , I also have carpal tunnel they only seem to be addressing the depression part and ingoring my other health problems! the lawyer I went to says 18 months to 2 years for a hearing! Why so long? and then what does a person due for money in the mean time my husband makes descent money and has good insurance but still... he tells me that I don�t need to work then he will say off the wall comments like I don�t give up no matter how much I hurt and if I say something about his remark he will say I didn�t mean anything about you im saying about myself. also when I say how much I miss work he says I wish I could stay home and not worry about anything.And then if Im not home when he gets here then I here off haqndrd comments all nite. I hear everynite how tired he is and if I say anything about me its everything is about you, that gets me to crying! Id give anything to go back and work like I was and feel I have a legitiment reason not to cook be tired etc even though I feel like Ive worked an 8 hour day after buying groceries! he doesn�t understand that he acts like Ive been playing when I go shopping! Any way Ive blew off enough steam! Where are you at? Im in Rockport Washington very small town only 33 houses I have three kids boys 16 and 17 going to be 18 in march daughter 20 living with useless boyfriend! How about you? Hope I didn�t scare you off with all of this ! take care , FIBRO HUGS Lxxx Hi, I just found this site. It has helped me a lot but scared me too. I have questions but I am not sure where I am in this E mail. Can I talk to people with Fibromyalgia and get a few answers? I am seeing Doctors now about all this and am going through what I have read about some of you about getting the right tests, the right Doctor and the right answers to my problems. One thing I have been having I have not seeing in my reading is BURNING! Feels like my legs and feet, arms are sitting in a fire pit. My feet hurt and walking is hard to do. I have bubbles popping under my skin. Has anyone felt this with fibromyalgia? Please help with an answer if you can Thank you Glenda! Thank you so much for your e mail. Tell you the truth I didn't think I'd get an answer back. You helped me a lot already. 30 years!! How do you do it? I have so much pain I can't take it anymore. I think if I get and stay drunk I'll be ok than, no pain. Stinking thinking huh? I was diagnosed with Fibo on the 17th,the day you wrote back to me. It hit my hard and I had a bad day trying to deal with this, but now finally I know what's been wrong with me. I don't know much about this and I only know about it at all cuz I went to a pain clinic and she gave me a mead. I never heard of (Lyrica-pregnable) so I went on line to see about side affect's. I found your site. This is used for Fide. When I read the list of symptoms I just cried. I had them...all. For years. It's been about two months ago that my legs and feet started to burn. From the hips down I was on fire and it keeps moving or pulsating. I have muscle spasm that feel like.....? like my blood is boiling. Just under the skin all over all the time, like bubbles popping. It never stops and I can feel my heart beat in my legs and feet. Right now my feet so "hot" it's hard to walk. To make it short I had lots of tests and finally the doc. that did a nerve conduction test told me he was sure Fibo is here to stay! I do have a few more ? if you could get back to me on. Hair loss? Mine is long and falling out by the palm full. Is this a "symptom" that you know about? Do you take anything for the pain? doe's it get worse in time? Thank you again for answering me and please lets keep in touch! A***** |
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