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Updated: 9-21
Cloud-townsend
Solutions for lifeMy Gastroparesis Story
My Gastroparesis Story
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Gastroparesis is usually caused by nerve damage to the digestive tract. A slowing of bile flow is my main issue which I don't know whether is Gastroparesis related. I still can eat but with constant food intolerances and allergies I have to change my diet so often that it leaves me with little to eat and often not knowing what is safe to eat at any given time. There isn't a food I haven't gotten a reaction from and had to avoid for a time. Some foods can be added back but others can't. So often when I eat I wonder if I'm eating something that will make me sick. My appetite is never good and food often doesn't have much taste. I rarely go a month without many intolerance/allergic reactions.
My Energy level limit to do things is only about an 1 hour and that's really pushing myself, longer periods can fatigue me for days. I hardly leave the house due to the fatigue and it is all that I can do to make it to church if at all many Sundays. At times my fatigue also causes me to be unable to drive. 
On rare occasion I need to sleep during the day and night to rest up.
More Info
On top of all this I often can't sleep. Also, I use to have serious problems when people talked about food or ate in front of me. It would hurt so much to think about the foods I couldn't eat that I would dream about eating them. I use to be nauseous to the point I couldn't eat or get comfortable because of all the gas, cramps and nausea. Pepto became my best friend so I'm very allergic to it now. I use to throw up food I ate three days before still undigested; I was that bad at one point. I also had the reverse problem too when I'd feel very sick and food would go through me too fast. I never have these problems now but at times I soil myself when I'm out and have to hurry home.
Some with Gastroparesis get to the point of not being able to eat anymore and have to be tube or IV feed.
I often have to eat what's setting me off many times before I narrow down the food that are bothering me. Now I have my foods/products tested by what is called, Mobility Testing so I know what foods are OK for me to eat at least at time of testing. It is taught and done at any of the Center IMT centers.
Faith In Prayer
I feel if others knew how serious this was they would understand better. I often get the comment that I probably have to do things on my good days, that would be nice, I never have good days where I feel good.
Also, I have a hard time caring for myself and home. My mind is very fatigued so I can seem pretty off forgetting things and just not being with it. I often have trouble keeping my weight on, one time I went down to 106 lbs. When I can gain weight I try to put extra pounds on for this reason.
Diane
