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First Name : Jennifer
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Cross Lanes, WV USA
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Comments : My father has been recently diagnosed with FAP at 53. His mother died from this. I am now 32 and pregnant and am concerned for me, my children, and my brother. He will have colon removed in 2 weeks.
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First Name : Mary Jane
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Oakdale, Ca USA
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Comments : Hi! I just found out yesturday, 4/22 that I have polyposis and need surgery to remove 5' of my colon leaving 12". Dr. says I can lead a normal life as the polyps are not malignant. Is this FAP? I need to talk to someone who can explain things to me. My Dr
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First Name : Stephanie Vensel
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Valrico,Fl. USA
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Comments : I and my brother 19 both inherited FAP from our father,who died at age 32 of cancer. I am now 43 & my brother is 42. I cried when I found this website, we felt isolated and alone.
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First Name : Stephanie Vensel
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Webpage :
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Email Address :
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City, State, Country: :
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Comments :
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First Name : Kevin
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Searcy, Arkansas, USA
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Comments : My daughter, age 7, had her colon removed almost two years ago. Just found what looked like blood, she is going to her doctor asap. Is bleeding accompany this long after surgery??
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First Name : kristen
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Webpage :
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Email Address : [email protected]
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City, State, Country: : crown point In US
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Comments :
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First Name : AnneMarie
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Oakland CA , USA
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Comments : I do not know anyone else with FAP. It sure would be nice to communicate with someone who does and maybe even meet if there are any in the Bay Area.
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First Name : Barb
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Davenport, IA USA
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Comments : I had a subtotal colectomy 12 years ago after being found with 100s of polyps (no cnacer!) and my 3 kids are checked yearly with a sigmoidoscopy and so far so good..all 3 have shown no signs of any polyps...the oldest 27 and the youngest 20
This sight is
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First Name : Barb
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Webpage :
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Email Address : [email protected]
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City, State, Country: :
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Comments : I am just amazed at this web site what an awesome job.
For years my husband thought he had FAP but after a DNA test discovered he had a rarer form of polyps FJP. Familial juvenilile polyps. They grow in the colon, stomach esphogus etc. My husband had a
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First Name : Rita
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Malaga, Spain
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Comments : Hello, So pleased to have found this Website. I have been diagnosed Gardners Syndrome. I am 45yrs. My symptoms: Abnormal bone growth to lower outer jawbone and palette. (Hard boney ridges). Doctors have said Colonoscopy/Gasoscopy is necessary! Please,Plea
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First Name : Jason
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Webpage :
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Email Address : [email protected]
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City, State, Country: : abbotsford BC
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Comments : Has anyone had anything similar to this ? Had 4 biopsies (benign). Scheduled for another - they dont know what it is. Suggestions...
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First Name : Jason
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Abbotsford BC Canada
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Comments : Enjoyed reading the stories. Have one of my own... I had an IRA done in 1996. Within the last year I have developed a large mass (possibly mesenteric fibrosis according to the radiologist)just below my gallbladder. I have had 4 core biopsies and have been
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First Name : vicky
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Bakersfield calif
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Comments : my husband was was told at age 17 he had fap as did his father and grandfather he is 43 now and has had 3 surgerys so far so good.now our kids are being tested. im really scared and would like to take to others going throught this. please.
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First Name : vicky
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Webpage :
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Email Address : [email protected]
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City, State, Country: : bakersfield ca.
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Comments : this fap has almost distroyed this family
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First Name : Richard
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Webpage :
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Email Address : [email protected]
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City, State, Country: : United Kingdom
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Comments : Hi, very glad to find your website. I was diagnosed with Gardners Syndrome at about age 11. I am now 31. I had regular colonoscopies, but was perforated at age 16. This left me emotionally scared(depressed and on anti- depressants) My father also had this
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First Name : carol
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Webpage :
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Email Address : [email protected]
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City, State, Country: : kent england
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Comments : hello
my husband has fap, we also have 3 children that will have to be screened.my husbands name is lee,he has alredy had 2 surgerys for fap,also has polyps in stomach and duodenum.anyone that wishes to contact us please feel free.
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First Name : Kevin
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Searcy, Arkansas, USA
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Comments : Just found this site, alot of 'good stuff'. My little daughter now seven, diagnoised at age five with FAP. Her was colon removed the summer before she started first grade.
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First Name : JANE
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Webpage :
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Email Address : [email protected]
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City, State, Country: : WILSON, NC USA
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Comments : I WAS DIAGNOSED WITH FAP IN 2000 AT THE AGE OF 40. MY SURGERY, A SUBTOTAL COLECTOMY, WAS PERFORMED AT DUKE UNIVERSITY MEDICAL CENTER IN JANUARY OF 2001. THANK YOU FOR THE OPPORTUNITY TO HEAR FROM OTHER FAP SURVIVORS.
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First Name : Jai
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Webpage : www.geocities.com/queserasera2003/Jamie.html
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Email Address : [email protected]
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City, State, Country: : Warrenton, Va, USA
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Comments : I have FAP and I was in the hospital on my 16th birthday. It has been almost one whole year since my first surgery and I am now working on getting a 5th. I had over 2000 polyps in my colon. Feel free to email me if you would like to talk sometime about th
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First Name : Leigh
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Webpage :
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Email Address : [email protected]
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City, State, Country: : San
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Comments :
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First Name : Dan
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Vancouver, BC, Canada
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Comments : Hi, I was diagnosed with Gardeners Syndrom 5 years ago. I am 21 now, Haven't had surgery. I have had success in managing the polyps with a change of diet and sulindac. There is hope! Willing to talk if you e-mail. Cheers, Dan
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First Name : Maureen
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Carlisle, England
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Comments : Hi I have just found this web site which I think is great. It is so comforting to know that there are other people out there to whom I can totally relate to. I have FAP and had surgery 8 months ago.I would love to hear from anyone else who finds themselfs
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First Name : Mary Jones
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Tempe, AZ
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Comments : What a wonderful web site. I just discovered it. My grandaughter's husband and his mother have been diagnosed with FAB and my granddaugher has three darling babies, who must be tested, ages 4, 2, 5 months. She is devastated. I have sent her your web site
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First Name : Sandy
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Webpage :
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Email Address : [email protected]
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City, State, Country: : River Falls, WI. USA
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Comments :
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First Name : Johnnie
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Gainesville,Ga. USA
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Comments : HELLO EVERYONE I HAVE FAP/GARDNERS SYNDROME. I WAS DIAGNOSED 6 YEARS AGO. I HAD MY COLON REMOVED DUE TO POLYPS AND CANCER. I NOW HAVE AN ILEOSTOMY. MY MOTHER HAD COLON CANCER BUT SHE IS DOING WONDERFUL. I HAD TO HAVE CHEMO AND RADIATION THERAPY. MY DOCTOR
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First Name : Stacey
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Mt. Holly, NC
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Comments : I was diagnosed with FAP 20 years ago at the age of 11. I have had a total colectomy with ileoanal anastamosis.
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First Name : lorraine Kitzen
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Aukland, New Zealand
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Comments : My name is Lorraine , My mother has FAP,and l was diagnosed with it, had collectomy @ 25yrs as had 100 of polyps. 3 yrs ago @ 42 yrs had lump in duoedenum removed then another operation 6mths later to remove part of pancreas and to have as drs put it "tot
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First Name : Jenny
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Collinsville, OK USA
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Comments : I have a 7 year old daughter w/ FAP. She had total colectomy April 2000 when she was 4.-Write
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First Name : Charity Goodwin
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Lawrnece Co.Alabama
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Comments : My 6 yr old daughter has FAP digonesed in Dec 14, 2001. Her Bio Father's family had this cancer, I need more info if anyone can help me. Thank you
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First Name : Charity Goodwin
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Lawrnece Co.Alabama
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Comments : My 6 yr old daughter has FAP digonesed in Dec 14, 2001. Her Bio Father's family had this cancer, I need more info if anyone can help me. Thank you
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First Name : terry
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Webpage :
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Email Address : [email protected]
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City, State, Country: : united kingdom
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Comments : What a very informative site.
I was diagnosed with f.a.p 20 year's ago,inherited from my father.
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First Name : terry
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Webpage :
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Email Address : [email protected]
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City, State, Country: : united kingdom
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Comments : What a very informative site.
I was diagnosed with f.a.p 20 year's ago,inherited from my father.
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First Name : Linda
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Ohio, USA
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Comments : I was diagnosed with FAP, Gardners, pouch surgery 1990,surgeries for lots of desmoids, adhesions, strictures, blockages, stomach polyps, now ademnomas in duodenum. Looking at surgery soon to remove duodenum and part of pancreas. This website is great.
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First Name : Dawn
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Cedar Lake,IN. U.S.A.
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Comments :
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First Name : Jean
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Poughkeepsie, NY
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Comments : This webpage is soooooo great! I never knew anyone else who had the freckles in their eyes.... my friends all think I'm crazy when I tell them about the freckles! Glad to know I am in good company. =) I was diagnosed with FAP when I was 15. I am now 20 an
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First Name : Dorothy
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Indiana usa
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Comments : Nov.2001
Hi, I just found this site and what a blessing to have found others who can relate. I had an illeostomy 3 years ago from FAP and was told by my surgeon that I did not have to worry about this disease again. But this week I have found out that my
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First Name : Dorothy
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Indiana usa
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Comments : Nov.2001
Hi, I just found this site and what a blessing to have found others who can relate. I had an illeostomy 3 years ago from FAP and was told by my surgeon that I did not have to worry about this disease again. But this week I have found out that my
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First Name : Leigh
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Webpage :
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Email Address : [email protected]
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City, State, Country: : greenville, NC usa
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Comments : Does anyone know of a physician in North Carolina who specializes in
FAP???? I have a close family friend who was just diagnosed and needs to establish care. If you have any suggestions, please contact me. Thanks!
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First Name : Terry
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Russellville, MO USA
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Comments : Daughter, age 18 diagnosed with familial polyposis. Suggested to remove colon & connect small intestine to rectum. Down the road does this affect a future pregnancy;is there a major amount of fatigue? She also falls off our insurance when she turns 19. Wi
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First Name : Rebecca
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Montreal, Quebec
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Comments : I was diagnosed with FAP at 20 yr after constant rectal bleeding and loose bowls and hemroids. I luckly got fed up with wronge diagnoses and found a great DR. The I had my colon removed which was full of polps (thousands) which had turned cancerous. Unfor
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First Name : stephen
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Webpage :
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Email Address : [email protected]
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City, State, Country: : Vancouver, BC, Canada
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Comments : I was diagnosed with FAP in july of 2001. I didn't have many polups but one was large and had turned cancerous. It had almost obstructed my bowel. The cancer had attached it self to my spleen and that was removed. I should be clear of cancer now. I'm temp
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