clicking on these links will lead you away from this site
One main reason I developed this site was that I myself could not find much information on acquired hemophilia A on the Web. Therefore, as you can see, most of the links I've listed below either mention this condition briefly or not at all. Use your best judgment when visiting any of these other Web sites, and if you have any questions, please ask your doctor for clarification, as I have tried to emphasize on this site acquired hemophilia A is not hemophilia A and should not be treated in the same manner!
resources specific to acquired hemophilia A (or other hemophilias)
- Canadian Hemophilia Society - Canadian organization providing information and support to people with inherited blood disorders (not acquired hemophilia A)
- Hemophilia Galaxy page on Acquired Inhibitors on thereforyou.com - run by Baxter Healthcare, the only page I've found so far that does a decent job explaining what acquired inhibitors to blood clotting factors are. poke around for more information
- Hemophilia Treatment Centers (CDC) - the Centers for Disease Control and Prevention (CDC) listing of approximately 140 hemophilia treatment centers in the U.S., organized by state
- Mayo Clinic page on Hemophilia - including information on signs and symptoms, causes, when to seek medical help, complications, and more
- MedlinePlus index on Hemophilia - links to information on diagnosis/symptoms, coping, specific conditions, clinical trials, genetics, and more
- National Hemophilia Foundation - U.S.-based nonprofit sponsoring research on bleeding and clotting disorders
- NovoSeven information for health care professionals in the European Union (EU) and the American general public - on Novo Nordisk's Web site
- Wikipedia entry on factor VII - "quick fix" treatment for acute bleeding in acquired hemophilia A patients; also known as recombinant factor VIIa or NovoSeven
- Wikipedia entries on Haemophilia and Haemophilia A - written by the general public for the popular Wikipedia online encyclopedia, these are good, relatively easy to digest starting points to learn about bleeding disorders
- World Federation of Hemophilia - worldwide nonprofit embracing the vision of "Treatment for All" (hoping that one day, treatment will be available for all those with inherited bleeding disorders, regardless of where they live)
resources nonspecific to acquired hemophilia A
- AIDSinfo drug record on Immune Globulin - I probably wouldn't have listed this here, since AIDSinfo is an HIV/AIDS information site, but I oversaw the drug database over there for nearly 5 years, and IVIG is one of the possible treatments for people with acquired hemophilia A. (Note: I now do not attest to the accuracy of the record since I left.)
- Chronic Illness Coping - an interesting page developed by Vijai P. Sharma, Ph.D., on the psychology of coping with chronic illness
- HealingWell.com - an information resource for patients, caregivers, and families coping with diseases, disorders and chronic illness
- Medic-Alert - U.S.-based (with worldwide support) nonprofit service that catalogues personal health records to assist medical personnel treating people with unusual medical conditions in an emergency
- MedlinePlus - highly recommended U.S. govt-sponsored site where you can search for conditions and drug names and pull up relatively easy to read pages of information including this index of resources on Coping with Chronic Illness
M. Chang
17 November 2006
last update 14 August 2008
