 |
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
 |
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
 |
|
|
|
|
|
|
|
|
|
The phone number to the room is 626-359-8111 x64716
Day +10
Update 1-17-05
Liz finally lost her hair this weekend. They are coming in to shave the rest of it off this morning. All in all she is doing ok. Her tummy has been really bothering her, but is all to be expected. She has had a couple of fevers also, but they give her some antibiotics. All of this is normal. We are waiting for her white cells to come up which happens sometime after day +14 so we are only 4 days away from that window. She gets one more treatment of MTX tomorrow, then its just a waiting game.
|
|
|
|
|
|
 |
|
|
|
|
|
|
|
|
|
01-04-2005
Happy New Year Everyone.
Liz has been undergoing chemotherapy for the past 7 days and she is doing really well. She cruised through the busolfan, then she got Rabbit ATG and struggled a little when she was getting it, then she perked right back up. Now she is alternating ATG with cytoxin. Her first does make her a little achy and gave her some problems with her nose, other than that she has
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
Update 12-16-04
OK Lots to talk about. We went in on the Dec 12th to start Chemotherapy. She had her first
|
|
|
|
|
|
|
|
|
Update 9-16-04
Before Liz's 12th birthday, she had to have blood and platelets transfusion and they put her back on the neuopegen. We also talked to the City of Hope, who recommended that we look to have a bone marrow transplant sooner than later. So that means for all yall to get ready to come down and do some donating of blood and platelets. We will let everyone know what is going on with this a little later.
|
|
|
|
|
|
|
|
|
|
|
Update 9-2-04
Liz held steady last week. They thought they were going to have to give a transfusion because her levels dropped when
|
|
|
|
|
|
|
|
|
|
Update 8-16-04
They took another cat scan and they found that the stone was gone. She didn't feel a thing. So we got to go home on Thursday. She is doing good right now, hoping she gets to go back to school when her tract starts up again in a couple of weeks.
|
|
|
|
|
|
|
|
|
|
|
|
|
|
Update 8-3-04
We are on our way home tomorrow!! The Dr. said that Liz is looking good and she is sending us home tomorrow, so as long as we are out of the hospital by 1:00 or so, we will make it to the airport in time. Some other good
|
|
|
|
|
|
|
|
|
Update 8-11-04
We came back last Wednesday and everything was going good. She developed a mild rash which they said could happen, then on Saturday she got a little fever so off to Kiaser we flew. They said that nothing was wrong and that it was a symptom of the treatment in Maryland. So she
|
|
|
|
|
|
|
|
|
|
|
|
But at least when we are being observed, we can stay back at the inn instead of in the hospital. We might be meeting with one of the Chinese
|
|
|
|
|
|
|
|
|
Update 7-29-04
We finally started treatment today, and she did pretty well. She had a mild reaction to the medication and she became a little splotchy at the end but not too bad. She also got a little fever and a little puking went on. All in all she is doing pretty good. She spent most of the time sleeping. This is day 1 of four and they say that this is suppose to be the worst day of them all, and hasn't been too bad. We will update again tomorrow.
|
|
|
|
|
|
|
|
|
|
|
Update 7-27-04
Liz was accepted yesterday into a protocol for MDS. However, the doctor said that she was going to go away from the protocol or "off-Protocol". They are going to be treating her with ATG or Antithromylcin Globulin or something like that. She is going to get treated with this for four days, then she has to be observed for a couple of more. One doctor says a week,, the other says 10 days so we still don't know when we are coming home. But what we do know is that she will be done in 10 days tops unless she
|
|
|
|
|
|
|
|
|
Update 7-24-04
We go in to Maryland this evening 25 minutes earlier than scheduled.. Everything went great. We had no problems getting out tickets. One of the first people off the plane, our luggage was 2nd off the conveyer, we went to get the shuttle to the rental car area, walked out got on and we took off. Got to the enterprise counter and walked right up and in less than 5 minutes, we were on our way. This place is HUGE. 320 Acres worth. Anyway we got settled and went in to DC to get something to eat and check things out. We ended up stopping at the Jefferson Memorial. You can check out the new pictures #69 & 70 on the pictures page. Tomorrow is a free day for us so we are going to spend the day in DC.
|
|
|
|
|
|
|
|
|
|
|
Update 7-22-04
Lizzy's doctor appointment today went really good. She did some more blood work and her white blood cell count came back up to 1.9 from the 0.2 that it was at the other day. Her platelets also were maintained going from 133 to 107, so she does not need another transfusion before we leave. She also does not have to wear a mask on the airplane this Saturday, so she is thrilled about that. We are going to leave at 8:20 am on Saturday and we have a little layover in Phoenix then on to Bethesda MD.
|
|
|
|
|
|
|
|
|
|
Update 7-19-04
We went in today for our weekly visit and found a lot of things out. We are definitely going to Baltimore this weekend. We will be leaving on Saturday the 24th. We might be there for as long as two weeks. Also today, Liz's platelets came back low so they needed to give her a platelet transfusion. The put an IV into her arm and drip it in. It took about an hour our so to do it. The Dr. said that this was a result of her taking here off of the every other day neupogen shot and that it was nothing to be concerned about. The Dr. said that she was surprised that we had gone this long without one.
|
|
|
|
|
|