Seizure types include Clonic-Tonic and myclonic

Medications used to control the seizure include:

Phenobarb - discontinued due to sedative and limiting factors

Mogadon - discontinued - expected lose of control due to age

Diamox - lost affectiveness

Depakan - allergic reaction leading to pancreatitis and coma

Vigabitrim - affective and still used for clonic-tonic seisures

Clobazan (Frisium) - affective and still used for myclonic

Seizures for the most part have been controlled from a visual perspective. There is always some activity going on in an EEG. We have experienced prolonged seizures which we have treated with Ativan effectively until recently. On Sept. 26th 1996 Katie had a 105 minute seizure that was finally brought under control with the eighth dose of medication at Peel Memorial Hospital. The seizure was brought upon by a procedure being performed by the parents to disenpact our daughter after a long Hospital stay for UTI/ Kidney infection. Two liters of water was given. This had been done in the past using gastrolyte, however, after being questioned by a nurse why we use so much gastrolyte, we used distilled water. The sodium and chloride levels dropped significantly, leading to this seizure. This is the understanding and belief of Mom and Dad, and supported by our Neurologist Dr. McGregor from the Hospital For Sick Children in Toronto.