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The Muscular Dystrophy Association includes CMT in their charter as one of the more than 40 neuromuscular diseases, even though CMT is not a muscular dystrophy. MDA offices in most countries can supply you with basic CMT information . They may also have the addresses of organizations in their country that deal only with CMT if such
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Muscular Dystrophy Association-Australia Address: 111 Boundary Road, North Melbourne 3051 Australia Postal: GPO Box 9932 Melbourne 3001 Australia Ph: 61 3 9320 9555 Fax: 61 3 9320 9595 Freecall 1 800 656 MDA Email: Info - mda.org.au ![]() Muscular Dystrophy Association - Austria Kontakt:: Mag. Sabine Bayer Pomisgasse 13/2 A-8010 Graz Tel./Fax: +43 (0) 316 81 43 84 e-mail: Contact oder: Elke Trummer Mühlgasse 6 A-8330 Feldbach Tel: +43 (0) 31 52 27 22 Fax: +43 (0) 31 52 43 40 16 e-mail:Contact ![]() Muscular Dystrohpy Association-Canada National Office 2345 Yonge Street, Suite 900 Toronto, Ontario M4P 2E5 Telephone:(416)488-0030 or 1-800-567-2873 Fax:(416)488-7523 Email: info - muscle.ca Bristish Columbia & Yukon Regional Office #303-1338 West Broadway, Vancouver, BC V6H 1H2 Tel:(604) 732-8799;OR 1-800-366-8166 fax: (604) 731-6127 e-mail: west - muscle.ca Prairies & NWT Regional Office Suite 300 Life Plaza 734 - 7th Ave. S.W. Calgary, Alberta T2P 3B8 Tel:403.287.9127 OR 1.888.277.7MDC (632) Fax:403-287-0936 e-mail: Calgary Muscle.ca Ontario & Nunavut Regional Office 2345 Yonge Street Suite 901 Toronto, Ontario M4P 2E5 Tel: (416) 488-2699 ext. 160 OR 1-800 567-2873 ext.160 Fax: (416) 488-0107 Quebec Regional Office 1425, René-Levesque Ouest, Bureau 506 Montréal, QC H3G 1T7 Tel:(514) 393-3522 OR 1-800-567-2236 fax: (514) 393-8113 e-mail: Quebec info - muscle.ca Atlantic Regional Office 500 Beaverbrook Court- 3rd Floor Fredericton, NB E3B 5X4 Tel:(506) 450-6322 OR 1-888-647-6322 fax: (506) 458-2205 ![]() Society for Muscular Dystrophy Information (SMDI) P.O. Box 479, Bridgewater, Nova Scotia B4V 2X6 Canada e-mail: smdi Nova Scotia ![]() Muscular Dystrophy Association - Denmark Dr. J. Rahbek Kongsvang Allé 23 8000 Aarhus C Denmark Muskelsvindfonden Kongsvang Allé 23 8000 Århus C. tel. 89 48 22 22 Telefonerne er åbne fra kl. 8.30 - 16 på hverdage. Fredag til kl. 15.00 e-mail: reception - muskelsvindfonden.dk ![]() Muscular Dystrophy Campaign - England Mrs. C. Cryne 7-11 Prescott Place, London SW4 6BS, UK Telephone 020 7720 8055 Facsimile 020 7498 0670 Helpline: 020 7720 8055 - Our Helpline is open from 10am to 4pm Monday to Thursday. Email:Muscular Dystrophy Campaign Branch and Regional Co-ordinator Joycelyn Amponsah Telephone: 020 7819 1821 Fax: 020 7498 0670 Email: muscular-dystrophy.org The Muscular Dystrophy Campaign has eight regional officers, 150 branches and 150 representatives in the UK. If you would like to know about events and activities in your area or find out where your nearest Muscular Dystrophy Campaign branch is please contact your nearest regional office. Registered Charity No.205395![]() European Alliance of Muscular Dystrophy Associations Copyright © EAMDA 2002 Address: c/o MDG Malta 4, GZIRA ROAD, GZIRA GZR 04 Malta Tel: 00356 21 346688 Fax: 00356 21 318024 e-mail: eamda ![]() Muscular Dystrophy Association- France l'Association française contre les myopathies (AFM), Address:: Ms. S. Charvet 1, rue de l'Internationale 91 000 Evry Cedex Tel : 01 69 47 28 28 prix d'un appel local: 0810 811 088 Une ligne directe donateurs:08 25 07 90 95 (0,15 euros TTC la minute). e-mail: afm France ![]() Muscular Dystrophy Association - Germany Deutsche Gesellschaft für Muskelkranke e.V. (DGM) Horst Ganter Im Moos 4 79112 Freiburg Tel.: 07665/9447-0 Fax: 07665/9447-20 e-Mail: info - dgm.org e-mail : dgm.org ![]() Muscular Dystrophy Association- Ireland 71/72 Red Cow Lane Carmichael House, North Brunswick Street., Dublin 7, IRELAND. Telephone:00353 (0)1 8721501 Fax:00353 (0)1 8724482 e-mail: mdi.Ireland Cork Office Main Office Building, Sunbeam Business Park Old Mallow Road Blackpool, Cork, IRELAND. Telephone:021-4309047 e-mail: info - mdi Ireland Galway Office, Ruxton House, 35/37 Dominick Street, Galway, IRELAND Telephone:091563000 e-mail: info mdi.ie Meath Office, North Eastern Health Board, Chamber Hall, Kells, Co. Meath IRELAND Telephone: 046 9080026 e-mail: info mdi.ie Sligo Office, Unit 4, Business Centre, Market Yard, Sligo, IRELAND e-mail: info mdi.ie ![]() Telethon Foundation- Italy Dr. N. Contucci Via G. Saliceto 5 00161 Rome ![]() Muscular Dystrophy Association - Italy National Secretariat Via P.P. Vergerio, 17 35126 Padova Italy Tel:++39 049-8021001-757361 Fax:++39 049-757033 e-mail:uildm.it e-mail: dmredaz - tin.it The Association is present throughout the Italian national territory with 9 regional Committees and 73 provincial Sections where members work on a voluntary basis in accordance with their professional nature in the fields where patients require assistance. The Sections carry out social work and medical assistance - to a wide extent rehabilitative, and some Sections run rehabilitation, prevention and research day-centres in close collaboration with universities and the Public Health Service. ![]() Prinses Beatrix Fonds (PBF) - Netherlands Mr. R.H. Gerschtanowitz Postbus 85810 2508 CM Den Haag Netherlands Bezoekadres Javastraat 86 2585 AS Den Haag Netherlands Tel: 070 3607607 Fax: 070 3648450 e-mail: info - beatrix.nl ![]() European Neuro Muscular Centre - Netherlands Lt.Gen. van Heutszlaan 6 3743 JN Baarn The Netherlands telephone: +31 35 5480481 fax: +31 35 5480499 e-mail: info - enmc.org ![]() Vereniging Spierziekten Nederland (VSN)Netherlands Mr P. Streng Lt.Gen. van Heutszlaan 6 3743 JN Baarn The Netherlands tel.(31) 35-5480480 fax.(31) 35-5480499 Infoline: 0900-5480480 e-mail vsn.nl ![]() Muscular Dystrophy Association - New Zealand PO Box 16 238 Sandringham, Auckland New Zealand e-mail: director - mda.org.nz ![]() Muscular Dystrophy - Switzerland - Schweizerische Gesellschaft für Muskelkranke SGMK Kanzleistrasse 80 8004 Zürich Switzerland Tel: 01 / 245 80 34 Fax: 01 / 245 80 31 Contact Alfred of Gunten e-mail: sgmk.ch ![]() Muscular Dystrophy Association-USA National Headquarters 3300 East Sunrise Drive Tucson, AZ 85718 USA Tel:1-800-572-1717 MDA CHATS Newsletters Support groups For a list of MDA locations world-wide, contact the MDA at 1-800-572-1717 in the USA | ||
was created by
Dorothy B. Gosling (Retired R.N.) and Kathleen Lopp Smith (deceased)
It is maintained by
Dorothy B. Gosling (Retired R.N.)
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