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The Muscular Dystrophy Association includes CMT in their charter as one of the more than 40 neuromuscular diseases, even though CMT is not a muscular dystrophy. MDA offices in most countries can supply you with basic CMT information . They may also have the addresses of organizations in their country that deal only with CMT if such organizations exist.


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ENMC - Netherlands

VSN - Netherlands

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Muscular Dystrophy Association-Australia

Address: 111 Boundary Road,
North Melbourne 3051
Australia
Postal: GPO Box 9932
Melbourne 3001
Australia
Ph: 61 3 9320 9555
Fax: 61 3 9320 9595
Freecall 1 800 656 MDA
Email: Info - mda.org.au

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Muscular Dystrophy Association - Austria

Kontakt::
Mag. Sabine Bayer
Pomisgasse 13/2
A-8010 Graz
Tel./Fax: +43 (0) 316 81 43 84
e-mail: Contact

oder:
Elke Trummer
Mühlgasse 6
A-8330 Feldbach
Tel: +43 (0) 31 52 27 22
Fax: +43 (0) 31 52 43 40 16
e-mail:Contact


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Muscular Dystrohpy Association-Canada

National Office
2345 Yonge Street, Suite 900
Toronto, Ontario M4P 2E5
Telephone:(416)488-0030 or 1-800-567-2873
Fax:(416)488-7523
Email: info - muscle.ca

Bristish Columbia & Yukon Regional Office
#303-1338 West Broadway,
Vancouver, BC V6H 1H2
Tel:(604) 732-8799;OR 1-800-366-8166
fax: (604) 731-6127
e-mail: west - muscle.ca

Prairies & NWT Regional Office
Suite 300 Life Plaza
734 - 7th Ave. S.W.
Calgary, Alberta T2P 3B8
Tel:403.287.9127 OR 1.888.277.7MDC (632)
Fax:403-287-0936
e-mail: Calgary Muscle.ca

Ontario & Nunavut Regional Office
2345 Yonge Street Suite 901
Toronto, Ontario M4P 2E5
Tel: (416) 488-2699 ext. 160 OR 1-800 567-2873 ext.160
Fax: (416) 488-0107

Quebec Regional Office
1425, René-Levesque Ouest, Bureau 506
Montréal, QC H3G 1T7
Tel:(514) 393-3522 OR 1-800-567-2236
fax: (514) 393-8113
e-mail: Quebec info - muscle.ca

Atlantic Regional Office
500 Beaverbrook Court- 3rd Floor
Fredericton, NB E3B 5X4
Tel:(506) 450-6322 OR 1-888-647-6322
fax: (506) 458-2205


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Society for Muscular Dystrophy Information (SMDI)

P.O. Box 479,
Bridgewater, Nova Scotia B4V 2X6
Canada

e-mail: smdi Nova Scotia


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Muscular Dystrophy Association - Denmark

Dr. J. Rahbek
Kongsvang Allé 23
8000 Aarhus C
Denmark

Muskelsvindfonden Kongsvang
Allé 23
8000 Århus C.
tel. 89 48 22 22
Telefonerne er åbne fra kl. 8.30 - 16 på hverdage. Fredag til kl. 15.00

e-mail: reception - muskelsvindfonden.dk


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Muscular Dystrophy Campaign - England

Mrs. C. Cryne
7-11 Prescott Place,
London SW4 6BS, UK
Telephone 020 7720 8055
Facsimile 020 7498 0670

Helpline: 020 7720 8055 - Our Helpline is open from 10am to 4pm Monday to Thursday.

Email:Muscular Dystrophy Campaign

Branch and Regional Co-ordinator

Joycelyn Amponsah
Telephone: 020 7819 1821
Fax: 020 7498 0670
Email: muscular-dystrophy.org

The Muscular Dystrophy Campaign has eight regional officers, 150 branches and 150 representatives in the UK. If you would like to know about events and activities in your area or find out where your nearest Muscular Dystrophy Campaign branch is please contact your nearest regional office.

Registered Charity No.205395


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European Alliance of Muscular Dystrophy Associations Copyright © EAMDA 2002

Address:
c/o MDG Malta 4,
GZIRA ROAD,
GZIRA GZR 04
Malta
Tel: 00356 21 346688
Fax: 00356 21 318024

e-mail: eamda


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Muscular Dystrophy Association- France
l'Association française contre les myopathies (AFM),


Address:: Ms. S. Charvet
1, rue de l'Internationale
91 000 Evry
Cedex
Tel : 01 69 47 28 28

prix d'un appel local: 0810 811 088
Une ligne directe donateurs:08 25 07 90 95 (0,15 euros TTC la minute).

e-mail: afm France


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Muscular Dystrophy Association - Germany
Deutsche Gesellschaft für Muskelkranke e.V. (DGM)


Horst Ganter
Im Moos 4
79112 Freiburg
Tel.: 07665/9447-0
Fax: 07665/9447-20

e-Mail: info - dgm.org
e-mail : dgm.org


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Muscular Dystrophy Association- Ireland

71/72 Red Cow Lane
Carmichael House,
North Brunswick Street.,
Dublin 7,
IRELAND.
Telephone:00353 (0)1 8721501
Fax:00353 (0)1 8724482
e-mail: mdi.Ireland

Cork Office
Main Office Building,
Sunbeam Business Park
Old Mallow Road
Blackpool, Cork,
IRELAND.
Telephone:021-4309047
e-mail: info - mdi Ireland

Galway Office,
Ruxton House,
35/37 Dominick Street,
Galway,
IRELAND
Telephone:091563000
e-mail: info mdi.ie

Meath Office,
North Eastern Health Board,
Chamber Hall,
Kells,
Co. Meath
IRELAND
Telephone: 046 9080026
e-mail: info mdi.ie

Sligo Office,
Unit 4, Business Centre,
Market Yard,
Sligo,
IRELAND
e-mail: info mdi.ie



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Telethon Foundation- Italy

Dr. N. Contucci
Via G. Saliceto 5
00161 Rome


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Muscular Dystrophy Association - Italy

National Secretariat
Via P.P. Vergerio, 17
35126 Padova
Italy
Tel:++39 049-8021001-757361
Fax:++39 049-757033

e-mail:uildm.it
e-mail: dmredaz - tin.it

The Association is present throughout the Italian national territory with 9 regional Committees and 73 provincial Sections where members work on a voluntary basis in accordance with their professional nature in the fields where patients require assistance.

The Sections carry out social work and medical assistance - to a wide extent rehabilitative, and some Sections run rehabilitation, prevention and research day-centres in close collaboration with universities and the Public Health Service.



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Prinses Beatrix Fonds (PBF) - Netherlands

Mr. R.H. Gerschtanowitz
Postbus 85810
2508 CM Den Haag
Netherlands

Bezoekadres
Javastraat 86
2585 AS Den Haag
Netherlands
Tel: 070 3607607
Fax: 070 3648450

e-mail: info - beatrix.nl


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European Neuro Muscular Centre - Netherlands

Lt.Gen. van Heutszlaan 6
3743 JN Baarn
The Netherlands

telephone: +31 35 5480481
fax: +31 35 5480499

e-mail: info - enmc.org


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Vereniging Spierziekten Nederland (VSN)Netherlands

Mr P. Streng
Lt.Gen. van Heutszlaan 6
3743 JN Baarn
The Netherlands
tel.(31) 35-5480480
fax.(31) 35-5480499

Infoline: 0900-5480480
e-mail vsn.nl


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Muscular Dystrophy Association - New Zealand

PO Box 16 238
Sandringham, Auckland
New Zealand

e-mail: director - mda.org.nz


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Muscular Dystrophy - Switzerland - Schweizerische Gesellschaft für Muskelkranke SGMK

Kanzleistrasse 80
8004 Zürich
Switzerland
Tel: 01 / 245 80 34
Fax: 01 / 245 80 31

Contact Alfred of Gunten
e-mail: sgmk.ch


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Muscular Dystrophy Association-USA

National Headquarters
3300 East Sunrise Drive
Tucson, AZ 85718 USA
Tel:1-800-572-1717

MDA CHATS
Newsletters
Support groups
For a list of MDA locations world-wide, contact the MDA at 1-800-572-1717 in the USA

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"Charcot-Marie-Tooth Disease - Survey and Information"
was created by
Dorothy B. Gosling (Retired R.N.) and Kathleen Lopp Smith (deceased)
It is maintained by
Dorothy B. Gosling (Retired R.N.)
© Copyright 1997-2005 All rights reserved An Inspiration
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