INFORMATION AND FACTS

THINGS WE SHOULD KNOW ABOUT

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Average time to be diagnosed is 7 -9 years
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68% of people are misdiagnosed with another condition :-

  1. IBS - Irritable Bowel Syndrome - 26%

  2. PID - Pelvic Inflammatory Disease - 9%

  3. Cystitis - Water infection - 2%

  4. Depression -3%

  5. Psychological Pain - Pain all in your mind - 5%

  6. Other - Any other illnesses - 22%

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64 % of people don't feel their treatment is effective and only 36% do
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85% that are on treatments are not pain free only 15% are.
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Asked if the pain from their endometriosis interfere with any of the following activities this is the results

 
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81% -Sleeping
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79%  -Working
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73% -Social Activities
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72% -Sexual Intercourse
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66% -Bowel Movements
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60% -Hobbies
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55% -Walking
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31% -Meal Preparation
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17% -Education
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11% -Other

 
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82% have said that in the last 5 years they have lost time at work due to the pain. (I have lost 2 jobs because of this which doesn't help with depression)
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43% are too scared to tell their employers they have endometriosis because they fear it may reduce their prospects.
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27% of people found that living with Endometriosis caused problems with their partners

 
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6% Said it Created problems with their family
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7% Said it affected their relationships
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8% Said it caused relationships to split
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8% Said it made it difficult to look after children
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17% Said there were other problems caused

 
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Asked how are you now that your endometriosis is under control 29% were Very dissatisfied

 
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36% Dissatisfied
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20% Neither satisfied or dissatisfied
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12% Quite satisfied
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3% Very satisfied

I think this explains how terribly uneducated we are on this subject and a lot more research need to be don to help the women the disease effects (which is over half the population in the U.K. alone about 2million girls and women, some don't know they have got it until they cannot conceive). It affects over 5.5 million women in North America alone too which I find amazing especially that there is so little known about it and no one really knows how to treat it.

There are so many tablets I have been on I wish I had more information to hand but I have found something which may help click here. It has a list of drugs that you probably will know if like me you have been given half a million different ones, I don't know weather it will help but it's just something I found let me know if it's any use.

 


 


 

 

 

 

 
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