1990's Brochure From
the National Institutes of Health (still
relevant)

Learning Disabilities
National Institute of Mental Health
Decade of the Brain NATIONAL INSTITUTES OF HEALTH
National Institute of Mental Health NIH Publication
No. 93-3611
September 1993 Message from the
National Institute of Mental Health Research
conducted and supported by the National Institute of
Mental.
In many years of work with animals as well as
human subjects, researchers have advanced our
understanding of the brain and vastly expanded the
capability of mental health professionals to
diagnose, treat, and prevent mental and brain
disorders. Now, in the 1990s, which the President and
Congress have declared the "Decade of the
Brain," we stand at the threshold of a new era
in brain and behavioral sciences. Through research,
we will learn even more about mental and brain
disorders such as depression, bipolar disorder,
schizophrenia, panic disorder, obsessive-compulsive
disorder, and learning disabilities. And we will be
able to use this knowledge to develop new therapies
that can help more people overcome mental illness.
The National Institute of Mental Health is part of
the National Institutes of Health (NIH), the Federal
Government's primary agency for biomedical and
behavioral research. NIH is a component of the U.S.
Department of Health and Human Services. Learning
Disabilities Understanding the Problem What is a
learning disability? What are the types of learning
disabilities? What causes learning disabilities? Are
learning disabilities related to differences in the
brain? Getting Help How are learning disabilities
first identified? How are learning disabilities
formally diagnosed? What are the education options?
Is medication available? How do families learn to
cope? Sustaining Hope Can learning disabilities be
outgrown or cured? What aid does the Government
offer? What hope does research offer? What are
sources of information and support? Developmental
Speech and Language Disorders Academic Skills
Disorders: Developmental Reading, Writing, and Math
Disorders LD With Attention Disorders Learning
Disabilities Imagine having important needs and ideas
to communicate, but being unable to express them.
Perhaps feeling bombarded by sights and sounds,
unable to focus your attention. Or trying to read or
add but not being able to make sense of the letters
or numbers.
You may not need to imagine. You may be the parent
or teacher of a child experiencing academic problems,
or have someone in your family diagnosed as learning
disabled. Or possibly as a child you were told you
had a reading problem called dyslexia or some other
learning handicap. Although different from person to
person, these difficulties make up the common daily
experiences of many learning disabled children,
adolescents, and adults. A person with a learning
disability may experience a cycle of academic failure
and lowered serf-esteem. Having these handicaps--or
living with someone who has them--can bring
overwhelming frustration. But the prospects are
hopeful. It is important to remember that a person
with a learning disability can learn. The disability
usually only affects certain limited areas of a
child's development. In fact, rarely are learning
disabilities severe enough to impair a person's
potential to live a happy, normal life.
This booklet is provided by the National Institute
of Mental Health (NIMH), the Federal agency that
supports research nationwide on the brain, mental
illnesses, and mental health. Scientists supported by
NIMH are dedicated to understanding the workings and
interrelationships of the various regions of the
brain, and to finding preventions and treatments to
overcome brain dysfunctions that handicap people in
school, work, and play. The booklet provides
up-to-date information on learning disabilities and
the role of NIMH-sponsored research in discovering
underlying causes and effective treatments. It
describes treatment options, strategies for coping,
and sources of information and support. Among these
sources are doctors, special education teachers, and
mental health professionals who can help identify
learning disabilities and recommend the right
combination of medical, psychosocial, and educational
treatment. In this booklet, you'll also read the
stories of Susan, Wallace, and Dennis, three people
who have learning disabilities. Although each had a
rough start, with help they learned to cope with
their handicaps. You'll see their early frustrations,
their steps toward getting help, and their hopes for
the future.
The stories of Susan, Wallace, and Dennis are
representative of people with learning disabilities,
but the characters are not real. Of course, people
with learning disabilities are not all alike, so
these stories may not fit any particular individual.
Understanding the Problem Susan [Graphic Omitted] At
age 14, Susan still tends to be quiet. Ever since she
was a child, she was so withdrawn that people
sometimes forgot she was there. She seemed to drift
into a world of her own. When she did talk, she often
called objects by the wrong names. She had few
friends and mostly played with dolls or her little
sister. In school, Susan hated reading and math
because none of the letters, numbers or "+"
and "-" signs made any sense. She felt
awful about herself. She'd been told--and was
convinced--that she was retarded. Wallace [Graphic
Omitted] Wallace has lived 46 years, and still has
trouble understanding what people say. Even as a boy,
many words sounded alike. His father patiently said
things over and over. But whenever his mother was
drunk, she flew into a rage and spanked him for not
listening. Wallace's speech also came out funny. He
had such problems saying words that in school his
teacher sometimes couldn't understand him. When
classmates called him a "dummy," his fists
just seemed to take over. Dennis [Graphic Omitted]
Dennis is 23 years old and still seems to have too
much energy. But he had always been an overactive
boy, sometimes jumping on the sofa for hours until he
collapsed with exhaustion. In grade school, he never
sat still. He interrupted lessons. But he was a
friendly, well-meaning kid, so adults didn't get too
angry. His academic problems became evident in third
grade, when his teacher realized that Dennis could
only recognize a few words and wrote like a first
grader. She recommended that Dennis repeat third
grade, to give him time to "catch up."
After another full year, his behavior was still out
of control, and his reading and writing had not
improved.
What is a learning disability?
Unlike other disabilities, such as paralysis or
blindness, a learning disability (LD) is a hidden
handicap. A learning disability doesn't disfigure or
leave visible signs that would invite others to be
understanding or offer support. A woman once blurted
to Wallace, "You seem so intelligent--you don't
look handicapped!" LD is a disorder that affects
people's ability to either interpret what they see
and hear or to link information from different parts
of the brain. These limitations can show up in many
ways--as specific difficulties with spoken and
written language, coordination, self-control, or
attention. Such difficulties extend to schoolwork and
can impede learning to read or write, or to do math.
Learning disabilities can be lifelong conditions
that, in some cases, affect many parts of a person's
life: school or work, daily routines, family life,
and sometimes even friendships and play. In some
people, many overlapping learning disabilities may be
apparent. Other people may have a single, isolated
learning problem that has little impact on other
areas of their lives. What are the types of learning
disabilities?
"Learning disability" is not a diagnosis
in the same sense as "chickenpox" or
"mumps." Chickenpox and mumps imply a
single, known cause with a predictable set of
symptoms. Rather, LD is a broad term that covers a
pool of possible causes, symptoms, treatments, and
outcomes. Partly because learning disabilities can
show up in so many forms, it is difficult to diagnose
or to pinpoint the causes. And no one knows of a pill
or remedy that will cure them. Not all learning
problems are necessarily learning disabilities. Many
children are simply slower in developing certain
skills. Because children show natural differences in
their rate of development, sometimes what seems to be
a learning disability may simply be a delay in
maturation. To be diagnosed as a learning disability,
specific criteria must be met. The criteria and
characteristics for diagnosing learning disabilities
appear in a reference book called the DSM (short for
the Diagnostic and Statistical Manual of Mental
Disorders).
The DSM diagnosis is commonly used when applying
for health insurance coverage of diagnostic and
treatment services. Learning disabilities can be
divided into three broad categories: * Developmental
speech and language disorders * Academic skills
disorders * "Other," a catch-all that
includes certain coordination disorders and learning
handicaps not covered by the other terms Each of
these categories includes a number of more specific
disorders. Because children do show natural
differences in their rate of development, not all
learning problems are learning disabilities.
Developmental speech and language disorders Speech
and language problems are often the earliest
indicators of a learning disability. People with
developmental speech and language disorders have
difficulty producing speech sounds, using spoken
language to communicate, or understanding what other
people say. Depending on the problem, the specific
diagnosis may be: * Developmental articulation
disorder * Developmental expressive language disorder
* Developmental receptive language disorder
Developmental articulation disorder. Children with
this disorder may have trouble controlling their rate
of speech. Or they may lag behind playmates in
learning to make speech sounds. For example, Wallace
at age 6 still said "wabbit" instead of
"rabbit" and "thwim" for
"swim." Developmental articulation
disorders are common. They appear in at least 10
percent of children younger than age 8. Fortunately,
articulation disorders can often be outgrown or
successfully treated with speech therapy. Some people
have trouble understanding certain aspects of speech.
Developmental expressive language disorder. Some
children with language impairments have problems
expressing themselves in speech. Their disorder is
called, therefore, a developmental expressive
language disorder. Susan, who often calls objects by
the wrong names, has an expressive language disorder.
Of course, an expressive language disorder can take
other forms. A 4-year-old who speaks only in two-word
phrases and a 6-year-old who can't answer simple
questions also have an expressive language
disability. Developmental receptive language
disorder. Some people have trouble understanding
certain aspects of speech. It's as if their brains
are set to a different frequency and the reception is
poor. There's the toddler who doesn't respond to his
name, a preschooler who hands you a bell when you
asked for a ball, or the worker who consistently
can't follow simple directions. Their heating is
fine, but they can't make sense of certain sounds,
words, or sentences they hear. They may even seem
inattentive. These people have a receptive language
disorder. Because using and understanding speech are
strongly related, many people with receptive language
disorders also have an expressive language
disability. Of course, in preschoolers, some misuse
of sounds, words, or grammar is a normal part of
learning to speak. It's only when these problems
persist that there is any cause for concern.
Academic skills disorders Students with academic
skills disorders are often years behind their
classmates in developing reading, writing, or
arithmetic skills. The diagnoses in this category
include: * Developmental reading disorder *
Developmental writing disorder * Developmental
arithmetic disorder Developmental reading disorder.
This type of disorder, also known as dyslexia, is
quite widespread. In fact, reading disabilities
affect 2 to 8 percent of elementary school children.
When you think of what is involved in the "three
R's"--reading, 'riting, and 'rithmetic--it's
astounding that most of us do learn them. Consider
that to read, you must simultaneously: * Focus
attention on the printed marks and control eye
movements across the page * Recognize the sounds
associated with letters * Understand words and
grammar * Build ideas and images * Compare new ideas
to what you already know * Store ideas in memory.
Such mental juggling requires a rich, intact network
of nerve cells that connect the brain's centers of
vision, language, and memory. A person can have
problems in any of the tasks involved in reading.
However, scientists found that a significant number
of people with dyslexia share an inability to
distinguish or separate the sounds in spoken words.
Dennis, for example, can't identify the word
"bat" by sounding out the individual
letters, b-a-t. Other children with dyslexia may have
trouble with rhyming games, such as rhyming
"cat" with "bat." Yet scientists
have found these skills fundamental to learning to
read. Fortunately, remedial reading specialists have
developed techniques that can help many children with
dyslexia acquire these skills. However, there is more
to reading than recognizing. words. If the brain is
unable to form images or relate new ideas to those
stored in memory, the reader can't understand or
remember the new concepts. So other types of reading
disabilities can appear in the upper grades when the
focus of reading shifts from word identification to
comprehension.
Children with dyslexia may have trouble with
rhyming games, such as rhyming "cat" with
"bat." Developmental writing disorder.
Writing, too, involves several brain areas and
functions. The brain networks for vocabulary,
grammar, hand movement, and memory must all be in
good working order. So a developmental writing
disorder may result from problems in any of these
areas. For example, Dennis, who was unable to
distinguish the sequence of sounds in a word, had
problems with spelling. A child with a writing
disability, particularly an expressive language
disorder, might be unable to compose complete,
grammatical sentences. Because developmental skills
build on each other, a person may have more than one
learning disability. Developmental arithmetic
disorder. If you doubt that arithmetic is a complex
process, think of the steps you take to solve this
simple problem: Arithmetic involves recognizing
numbers and symbols, memorizing facts such as the
multiplication table, aligning numbers, and
understanding abstract concepts like place value and
fractions. Any of these may be difficult for children
with developmental arithmetic disorders. Problems
with numbers or basic concepts are likely to show up
early. Disabilities that appear in the later grades
are more often tied to problems in reasoning.
Many aspects of speaking, listening, reading,
writing, and arithmetic overlap and build on the same
brain capabilities. So it's not surprising that
people can be diagnosed as having more than one area
of learning disability. For example, the ability to
understand language underlies learning speak.
Therefore, any disorder that hinders the ability to
understand language will also interfere with the
development of speech, which in turn hinders learning
to read and write. A single gap in the brain's
operation can disrupt many types of activity.
"Other" learning disabilities The DSM also
lists additional categories, such as "motor
skills disorders" and "specific
developmental disorders not otherwise
specified." These diagnoses include delays in
acquiring language, academic, and motor skills that
can affect the ability to learn, but do not meet the
criteria for a specific learning disability. Also
included are coordination disorders that can lead to
poor penmanship, as well as certain spelling and
memory disorders.
Attention disorders.
Nearly 4 million school-age
children have learning disabilities. Of these, at
least 20 percent have a type of disorder that leaves
them unable to focus their attention. Some children
and adults who have attention disorders appear to
daydream excessively. And once you get their
attention, they're often easily distracted. Susan,
for example, tends to mentally drift off into a world
of her own. Children like Susan may have a number of
learning difficulties. If, like Susan, they are quiet
and don't cause problems, their problems may go
unnoticed. They may be passed along from grade to
grade, without getting the special assistance they
need. In a large proportion of affected
children--mostly boys--the attention deficit is
accompanied by hyperactivity. Dennis is an example of
a person with attention deficit hyperactivity
disorder-ADHD. Like young Dennis, who jumped on the
sofa to exhaustion, hyperactive children can't sit
still. They act impulsively, running into traffic or
toppling desks. They blurt out answers and interrupt.
In games, they can't wait their turn. These
children's problems are usually hard to miss. Because
of their constant motion and explosive energy,
hyperactive children often get into trouble with
parents, teachers, and peers. By adolescence,
physical hyperactivity usually subsides into
fidgeting and restlessness. But the problems with
attention and concentration often continue into
adulthood. At work, adults with ADHD often have
trouble organizing tasks or completing their work.
They don't seem to listen to or follow directions.
Their work may be messy and appear careless.
Like young Dennis, who jumped on the sofa to
exhaustion, hyperactive children can't sit still.
Attention disorders, with or without hyperactivity,
are not considered learning disabilities in
themselves. However, because attention problems can
seriously interfere with school performance, they
often accompany academic skills disorders. What
causes learning disabilities Understandably, one of
the first questions parents ask when they learn their
child has a learning disorder is "Why? What went
wrong?" Mental health professionals stress that
since no one knows what causes learning disabilities,
it doesn't help parents to look backward to search
for possible reasons. There are too many
possibilities to pin down the cause of the disability
with certainty. It is far more important for the
family to move forward in finding ways to get the
fight help. Scientists, however, do need to study
causes in an effort to identify ways to prevent
learning disabilities. Once, scientists thought that
all learning disabilities were caused by a single
neurological problem. But research supported by NIMH
has helped us see that the causes are more diverse
and complex. New evidence seems to show that most
learning disabilities do not stem from a single,
specific area of the brain, but from difficulties in
bringing together information from various brain
regions.
Today, a leading theory is that learning
disabilities stem from subtle disturbances in brain
structures and functions. Some scientists believe
that, in many cases, the disturbance begins before
birth. A leading theory is that learning disabilities
stem from subtle disturbances in brain structures and
functions. Errors in fetal brain development
Throughout pregnancy, the fetal brain develops from a
few all-purpose cells into a complex organ made of
billions of specialized, interconnected nerve cells
called neurons. During this amazing evolution, things
can go wrong that may alter how the neurons form or
interconnect. In the early stages of pregnancy, the
brain stem forms. It controls basic life functions
such as breathing and digestion. Later, a deep ridge
divides the cerebrum--the thinking part of the
brain-into two halves, a right and left hemisphere.
Finally, the areas involved with processing sight,
sound, and other senses develop, as well as the areas
associated with attention, thinking, and emotion. As
new cells form, they move into place to create
various brain structures. Nerve cells rapidly grow to
form networks with other parts of the brain. These
networks are what allow information to be shared
among various regions of the brain. Throughout
pregnancy, this brain development is vulnerable to
disruptions. If the disruption occurs early, the
fetus may die, or the infant may be born with
widespread disabilities and possibly mental
retardation. If the disruption occurs later, when the
cells are becoming specialized and moving into place,
it may leave errors in the cell makeup, location, or
connections. Some scientists believe that these
errors may later show up as learning disorders.
By birth, all the basic structures of the brain
are present. Other factors that affect brain
development Through experiments with animals,
scientists at NIMH and other research facilities are
tracking clues to determine what disrupts brain
development. By studying the normal processes of
brain development, scientists can better understand
what can go wrong. Some of these studies are
examining how genes, substance abuse, pregnancy
problems, and toxins may affect the developing brain.
Genetic factors. The fact that learning disabilities
tend to run in families indicates that there may be a
genetic link. For example, children who lack some of
the skills needed for reading, such as hearing the
separate sounds of words, are likely to have a parent
with a related problem. However, a parent's learning
disability may take a slightly different form in the
child. A parent who has a writing disorder may have a
child with an expressive language disorder. For this
reason, it seems unlikely that specific learning
disorders are inherited directly. Possibly, what is
inherited is a subtle brain dysfunction that can in
turn lead to a learning disability. There may be an
alternative explanation for why LD might seem to run
in families.
Some learning difficulties may actually stem from
the family environment. For example, parents who have
expressive language disorders might talk less to
their children, or the language they use may be
distorted. In such cases, the child lacks a good
model for acquiring language and therefore, may seem
to be learning disabled. It seems unlikely that
specific learning disorders are inherited directly.
Tobacco, alcohol, and other drug use. Many drugs
taken by the mother pass directly to the fetus.
Research shows that a mother's use of cigarettes,
alcohol, or other drugs during pregnancy may have
damaging effects on the unborn child. Therefore, to
prevent potential harm to developing babies, the U.S.
Public Health Service supports efforts to make people
aware of the possible dangers of smoking, drinking,
and using drugs. Scientists have found that mothers
who smoke during pregnancy may be more likely to bear
smaller babies. This is a concern because small
newborns, usually those weighing less than 5 pounds,
tend to be at risk for a variety of problems,
including learning disorders.
Alcohol also may be dangerous to the fetus'
developing brain. It appears that alcohol may distort
the developing neurons. Heavy alcohol use during
pregnancy has been linked to fetal alcohol syndrome,
a condition that can lead to low birth weight,
intellectual impairment, hyperactivity, and certain
physical defects. Any alcohol use during pregnancy,
however, may influence the child's development and
lead to problems with learning, attention, memory, or
problem solving. Because scientists have not yet
identified "safe" levels, alcohol should be
used cautiously by women who are pregnant or who may
soon become pregnant. Drugs such as
cocaine--especially in its smokable form known as
crack--seem to affect the normal development of brain
receptors. These brain cell parts help to transmit
incoming signals from our skin, eyes, and ears, and
help regulate our physical response to the
environment. Because children with certain learning
disabilities have difficulty understanding speech
sounds or letters, some researchers believe that
learning disabilities, as well as ADHD, may be
related to faulty receptors. Current research points
to drug abuse as a possible cause of receptor damage.
Problems during pregnancy or
delivery.
Other possible causes of learning disabilities
involve complications during pregnancy. In some
cases, the mother's immune system reacts to the ferns
and attacks it as if it were an infection. This type
of disruption seems to cause newly formed brain cells
to settle in the wrong part of the brain. Or during
delivery, the umbilical cord may become twisted and
temporarily cut off oxygen to the fetus. This, too,
can impair brain functions and lead to LD. By
studying the normal processes of brain development,
scientists can better understand what can go wrong.
Toxins in the child's environment. New brain cells
and neural networks continue to be produced for a
year or so after the child is born. These cells are
vulnerable to certain disruptions, also. Researchers
are looking into environmental toxins that may lead
to learning disabilities, possibly by disrupting
childhood brain development or brain processes.
Cadmium and lead, both prevalent in the environment,
are becoming a leading focus of neurological
research. Cadmium, used in making some steel
products, can get into the soil, then into the foods
we eat. Lead was once common in paint and gasoline,
and is still present in some water pipes. A study of
animals sponsored by the National Institutes of
Health showed a connection between exposure to lead
and learning difficulties. In the study, rats exposed
to lead experienced changes in their brainwaves,
slowing their ability to learn. The learning problems
lasted for weeks, long after the rats were no longer
exposed to lead. In addition, there is growing
evidence that learning problems may develop in
children with cancer who had been treated with
chemotherapy or radiation at an early age. This seems
particularly true of children with brain tumors who
received radiation to the skull.
Are learning disabilities
related to differences in the brain?
In comparing people with and without learning
disabilities, scientists have observed certain
differences in the structure and functioning of the
brain. For example, new research indicates that there
may be variations in the brain structure called the
planum temporale, a language-related area found in
both sides of the brain. In people with dyslexia, the
two structures were found to be equal in size. In
people who are not dyslexic, however, the left planum
temporale was noticeably larger. Some scientists
believe reading problems may be related to such
differences. With more research, scientists hope to
learn precisely how differences in the structures and
processes of the brain contribute to learning
disabilities, and how these differences might be
treated or prevented. New research indicates that
there may be variations in the brain structure called
the planum temporale.
Getting Help
Susan.
Susan was promoted to the sixth grade but still
couldn't do basic math. So, her mother brought her to
a private clinic for testing. The clinician observed
that Susan had trouble associating symbols with their
meaning, and this was holding back her language,
reading, and math development. Susan called objects
by the wrong words and she could not associate sounds
with letters or recognize math symbols. However, an
IQ of 128 meant that Susan was quite bright. In
addition to developing an Individualized Education
Plan, the clinician recommended that Susan receive
counseling for her low self-esteem and depression.
Wallace
In the early 1960s, at the request
of his ninth grade teacher, Wallace was examined by a
doctor to see why he didn't speak or listen well. The
doctor tested his vocal cords, vision, and hearing.
They were all fine. The teacher concluded that
Wallace must have "brain damage," so not
much could be done. Wallace kept failing in school
and was suspended several times for fighting. He
finally dropped out after tenth grade. He spent the
next 25 years working as a janitor. Because LD
frequently went undiagnosed at the time when Wallace
was young, the needed help was not available to him.
Dennis
In fifth grade, Dennis' teacher sent him to the
school psychologist for testing. Dennis was diagnosed
as having developmental reading and developmental
writing disorders. He was also identified as having
an attention disorder with hyperactivity. He was
placed in an all-day special education program, where
he could work on his particular deficits and get
individual attention. His family doctor prescribed
the medication Ritalin to reduce his hyperactivity
and distractibility. Along with working to improve
his reading, the special education teacher helped him
improve his listening skills. Since his handwriting
was still poor, he learned to type homework and
reports on a computer. At age 19, Dennis graduated
from high school and was accepted by a college that
gives special assistance to students with learning
disabilities.
How are learning disabilities
first identified?
The first step in solving any
problem is realizing there is one. Wallace, sadly,
was a product of his time, when learning disabilities
were more of a mystery and often went unrecognized.
Today, professionals would know how to help Wallace.
Dennis and Susan were able to get help because
someone saw the problem and referred them for help.
When a baby is born, the parents eagerly wait for the
baby's first step, first word, a myriad of other
"firsts." During routine checkups, the
pediatrician, too, watches for more subtle signs of
development. The parents and doctor are watching for
the child to achieve developmental milestones. The
classroom teacher may be the first to notice a
child's persistent difficulties in reading, writing,
or arithmetic. Parents are usually the first to
notice obvious delays in their child reaching early
milestones. The pediatrician may observe more subtle
signs of minor neurological damage, such as a lack of
coordination. But the classroom teacher, in fact, may
be the first to notice the child's persistent
difficulties in reading, writing, or arithmetic. As
school tasks become more complex, a child with a
learning disability may have problems mentally
juggling more information.
The learning problems of children who are quiet
and polite in school may go unnoticed. Children with
above average intelligence, who manage to maintain
passing grades despite their disability, are even
less likely to be identified. Children with
hyperactivity, on the other hand, will be identified
quickly by their impulsive behavior and excessive
movement. Hyperactivity usually begins before age 4
but may not be recognized until the child enters
school. What should parents, doctors, and teachers do
if critical developmental milestones haven't appeared
by the usual age? Sometimes it's best to allow a
little more time, simply for the brain to mature a
bit. But if a milestone is already long delayed, if
there's a history of learning disabilities in the
family, or if there are several delayed skills, the
child should be professionally evaluated as soon as
possible. An educator or a doctor who treats children
can suggest where to go for help.
How are learning disabilities
formally diagnosed?
By law, learning disability is defined as a
significant gap between a person's intelligence and
the skills the person has achieved at each age. This
means that a severely retarded 10-year-old who speaks
like a 6-year-old probably doesn't have a language or
speech disability. He has mastered language up to the
limits of his intelligence. On the other hand, a
fifth grader with an IQ of 100 who can't write a
simple sentence probably does have LD. Learning
disorders may be informally flagged by observing
significant delays in the child's skill development.
A 2-year delay in the primary grades is usually
considered significant. For older students, such a
delay is not as debilitating, so learning
disabilities aren't usually suspected unless there is
more than a 2-year delay. Actual diagnosis of
learning disabilities, however, is made using
standardized tests that compare the child's level of
ability to what is considered normal development for
a person of that age and intelligence. Standardized
tests compare the child's level of ability to what is
considered normal development for a person of that
age and intelligence. For example, as late as fifth
grade, Susan couldn't add two numbers, even though
she rarely missed school and was good in other
subjects. Her mother took her to a clinician, who
observed Susan's behavior and administered
standardized math and intelligence tests. The test
results showed that Susan's math skills were several
years behind, given her mental capacity for learning.
Once other possible causes like lack of motivation
and vision problems were ruled out, Susan's math
problem was formally diagnosed as a specific learning
disability. Test outcomes depend not only on the
child's actual abilities, but on the reliability of
the test and the child's ability to pay attention and
understand the questions. Children like Dennis, with
poor attention or hyperactivity, may score several
points below their true level of ability. Testing a
child in an isolated room can sometimes help the
child concentrate and score higher. Each type of LD
is diagnosed in slightly different ways. To diagnose
speech and language disorders, a speech therapist
tests the child's pronunciation, vocabulary, and
grammar and compares them to the developmental
abilities seen in most children that age. A
psychologist tests the child's intelligence. A
physician checks for any ear infections, and an
audiologist may be consulted to rule out auditory
problems. If the problem involves articulation, a
doctor examines the child's vocal cords and throat.
In the case of academic skills disorders, academic
development in reading, writing, and math is
evaluated using standardized tests. In addition,
vision and hearing are tested to be sure the student
can see words clearly and can hear adequately. The
specialist also checks if the child has missed much
school. It's important to rule out these other
possible factors. After all, treatment for a learning
disability is very different from the remedy for poor
vision or missing school. ADHD is diagnosed by
checking for the long-term presence of specific
behaviors, such as considerable fidgeting, losing
things, interrupting, and talking excessively. Other
signs include an inability to remain seated, stay on
task, or take turns. A diagnosis of ADHD is made only
if the child shows such behaviors substantially more
than other children of the same age. If the school
fails to notice a learning delay, parents can request
an outside evaluation. In Susan's case, her mother
chose to bring Susan to a clinic for testing. She
then brought documentation of the disability back to
the school. After confirming the diagnosis, the
public school was obligated to provide the kind of
instructional program that Susan needed.
Some parents may find it helpful to ask someone
they like and trust to go with them to school
meetings Parents should stay abreast of each step of
the school's evaluation. Parents also need to know
that they may appeal the school's decision if they
disagree with the findings of the diagnostic team.
And like Susan's mother, who brought Susan to a
clinic, parents always have the option of getting a
second opinion. Some parents feel alone and confused
when talking to learning specialists. Such parents
may find it helpful to ask someone they like and
trust to go with them to school meetings. The person
may be the child's clinician or caseworker, or even a
neighbor. It can help to have someone along who knows
the child and can help understand the child's test
scores or learning problems. What are the education
options? Although obtaining a diagnosis is important,
even more important is creating a plan for getting
the right help. Because LD can affect the child and
family in so many ways, help may be needed on a
variety of fronts: educational, medical, emotional,
and practical. In most ways, children with learning
disabilities are no different from children without
these disabilities. At school, they eat together and
share sports, games, and after-school activities. But
since children with learning disabilities do have
specific learning needs, most public schools provide
special programs. Schools typically provide special
education programs either in a separate all-day
classroom or as a special education class that the
student attends for several hours each week. Some
parents hire trained tutors to work with their child
after school. If the problems are severe, some
parents choose to place their child in a special
school for the learning disabled.
Sometimes parents hire trained tutors to work with
their child after school. If parents choose to get
help outside the public schools, they should select a
learning specialist carefully. The specialist should
be able to explain things in terms that the parents
can understand. Whenever possible, the specialist
should have professional certification and experience
with the learner's specific age group and type of
disability. Some of the support groups listed at the
end of this booklet can provide references to
qualified special education programs. Planning a
special education program begins with systematically
identifying what the student can and cannot do. The
specialist looks for patterns in the child's gaps.
For example, if the child fails to hear the separate
sounds in words, are there other sound discrimination
problems? If there's a problem with handwriting, are
there other motor delays? Are there any consistent
problems with memory? Special education teachers also
identify the types of tasks the child can do and the
senses that function well. By using the senses that
are intact and bypassing the disabilities, many
children can develop needed skills. These strengths
offer alternative ways the child can learn. After
assessing the child's strengths and weaknesses, the
special education teacher designs an Individualized
Educational Program (IEP).
The IEP outlines the specific skills the child
needs to develop as well as appropriate learning
activities that build on the child's strengths. Many
effective learning activities engage several skills
and senses. For example, in learning to spell and
recognize words, a student may be asked to see, say,
write, and spell each new word. The student may also
write the words in sand, which engages the sense of
touch. Many experts believe that the more senses
children use in learning a skill, the more likely
they are to retain it. The student may also write the
words in sand, which engages the sense of touch. An
individualized, skill-based approach--like the
approach used by speech and language
therapists--often succeeds in helping where regular
classroom instruction fails.
Therapy for speech and language disorders focuses
on providing a stimulating but structured environment
for heating and practicing language patterns. For
example, the therapist may help a child who has an
articulation disorder to produce specific speech
sounds. During an engaging activity, the therapist
may talk about the toys, then encourage the child to
use the same sounds or words. In addition, the child
may watch the therapist make the sound, feel the
vibration in the therapist's throat, then practice
making the sounds before a mirror. Researchers are
also investigating nonstandard teaching methods. Some
create artificial learning conditions that may help
the brain receive information in nonstandard ways.
For example, in some language disorders, the brain
seems abnormally slow to process verbal information.
Scientists are testing whether computers that talk
can help teach children to process spoken sounds more
quickly. The computer starts slowly, pronouncing one
sound at a time. As the child gets better at
recognizing the sounds and heating them as words, the
sounds are gradually speeded up to a normal rate of
speech. Is medication available? For nearly six
decades, many children with attention disorders have
benefited from being treated with medication. Three
drugs, Ritalin (methylphenidate), Dexedrine
(dextroamphetamine), and Cylert (pemoline), have been
used successfully. Although these drugs are
stimulants in the same category as "speed"
and "diet pills," they seldom make children
"high" or more jittery. Rather, they
temporarily improve children's attention and ability
to focus. They also help children control their
impulsiveness and other hyperactive behaviors. The
effects of medication are most dramatic in children
with ADHD. Shortly after taking the medication, they
become more able to focus their attention. They
become more ready to learn.
Studies by NIMH scientists and other researchers
have shown that at least 90 percent of hyperactive
children can be helped by either Ritalin or
Dexedrine. If one medication does not help a
hyperactive child to calm down and pay attention in
school, the other medication might. The drugs are
effective for 3 to 4 hours and move out of the body
within 12 hours. The child's doctor or a psychiatrist
works closely with the family and child to carefully
adjust the dosage and medication schedule for the
best effect. Typically, the child takes the
medication so that the drug is active during peak
school hours, such as when reading and math are
taught. In the past few years, researchers have
tested these drugs on adults who have attention
disorders. Just as in children, the results show that
low doses of these medications can help reduce
distractibility and impulsivity in adults. Use of
these medications has made it possible for many
severely disordered adults to organize their lives,
hold jobs, and care for themselves.
In trying to do everything possible to help their
children, many parents have been quick to try new
treatments. Most of these treatments sound scientific
and reasonable, but a few are pure quackery. Many are
developed by reputable doctors or specialists--but
when tested scientifically, cannot be proven to help.
Following are types of therapy that have not proven
effective in treating the majority of children with
learning disabilities or attention disorders: *
Megavitamins * Colored lenses * Special diets *
Sugar-free diets * Body stimulation or manipulation
Although scientists hope that brain research will
lead to new medical interventions and drugs, at
present there are no medicines for speech, language,
or academic disabilities. There are no medicines for
speech, language, or academic disabilities. How do
families learn to cope? The effects of learning
disabilities can ripple outward from the disabled
child or adult to family, friends, and peers at
school or work. Children with LD often absorb what
others thoughtlessly say about them. They may define
themselves in light of their disabilities, as
"behind," "slow," or
"different." Sometimes they don't know how
they're different, but they know how awful they feel.
Their tension or shame can lead them to act out in
various ways--from withdrawal to belligerence. Like
Wallace, they may get into fights. They may stop
trying to learn and achieve and eventually drop out
of school. Or, like Susan, they may become isolated
and depressed. Children with learning disabilities
and attention disorders may have trouble making
friends with peers.
For children with ADHD, this may be due to their
impulsive, hostile, or withdrawn behavior. Some
children with delays may be more comfortable with
younger children who play at their level. Social
problems may also be a product of their disability.
Some people with LD seem unable to interpret tone of
voice or facial expressions. Misunderstanding the
situation, they act inappropriately, turning people
away. Without professional help, the situation can
spiral out of control. The more that children or
teenagers fail, the more they may act out their
frustration and damage their self-esteem. The more
they act out, the more trouble and punishment it
brings, further lowering their self-esteem. Wallace,
who lashed out when teased about his poor
pronunciation and was repeatedly suspended from
school, shows how harmful this cycle can be. Having a
child with a learning disability may also be an
emotional burden for the family. Parents often sweep
through a range of emotions: denial, guilt, blame,
frustration, anger, and despair. Brothers and sisters
may be annoyed or embarrassed by their sibling, or
jealous of all the attention the child with LD gets.
[Graphic Omitted] Support groups can be a source of
information, practical suggestions, and mutual
understanding. Counseling can be very helpful to
people with LD and their families.
Counseling can help affected children, teenagers,
and adults develop greater self-control and a more
positive attitude toward their own abilities. Talking
with a counselor or psychologist also allows family
members to air their feelings as well as get support
and reassurance. Many parents find that joining a
support group also makes a difference. Support groups
can be a source of information, practical
suggestions, and mutual understanding. Self-help
books written by educators and mental health
professionals can also be helpful. A number of
references and support groups are listed at the end
of this booklet. Behavior modification also seems to
help many children with hyperactivity and LD. In
behavior modification, children receive immediate,
tangible rewards when they act appropriately.
Receiving an immediate reward can help children learn
to control their own actions, both at home and in
class. A school or private counselor can explain
behavior modification and help parents and teachers
set up appropriate rewards for the child. Parents and
teachers can help by structuring tasks and
environments for the child in ways that allow the
child to succeed. They can find ways to help children
build on their strengths and work around their
disabilities. This may mean deliberately making eye
contact before speaking to a child with an attention
disorder. For a teenager with a language problem, it
may mean providing pictures and diagrams for
performing a task. For students like Dennis with
handwriting or spelling problems, a solution may be
to provide a word processor and software that checks
spelling.
A counselor or school psychologist can help
identify practical solutions that make it easier for
the child and family to cope day by day. Every child
needs to grow up feeling competent and loved. When
children have learning disabilities, parents may need
to work harder at developing their children's
self-esteem and relationship-building skills. But
self-esteem and good relationships are as worth
developing as any academic skill.
Sustaining Hope: Susan
[Graphic Omitted] Susan is now in ninth grade and
enjoys learning. She no longer believes she's
retarded, and her use of words has improved. Susan
has become a talented craftsperson and loves making
clothes and furniture for her sister's dolls.
Although she's still in a special education program,
she is making slow but steady progress in reading and
math.
Wallace
Over the years, Wallace found he
liked tinkering with cars and singing in the church
choir. At church, he met a woman who knew about
learning disabilities. She told him he could get help
through his county social services office. Since
then, Wallace has been working with a speech
therapist, learning to articulate and notice
differences in speech sounds. When he complains that
he's too old to learn, his therapist reminds him,
"It's never too late to work your good
brain!" His state vocational rehabilitation
office recently referred him to a job-training
program. Today, at age 46, Wallace is starting night
school to become an auto mechanic. He likes it
because it's a hands-on program where he can learn by
doing.
Dennis
Dennis is now age 23. As he walks into the college
job placement office, he smiles and shakes hands
confidently. After shuffling through a messy stack of
papers, he finally hands his counselor a neatly typed
resume. Although Dennis jiggles his foot and
interrupts occasionally, he's clearly enthusiastic.
He explains that because tape-recorded books and
lectures got him through college, he'd like to sell
electronics. Dennis says he'll also be getting
married next year. He and his fiancee are concerned
that their children also will have LD. "But
we'll just have to watch and get help early-a lot
earlier than I did!" Can learning disabilities
be outgrown or cured? Even though most people don't
outgrow their brain dysfunction, people do learn to
adapt and live fulfilling lives. Dennis, Susan, and
Wallace made a life for themselves--not by being
cured, but by developing their personal strengths.
Like Dennis' tape-recorded books and lectures, or
Wallace's hands-on auto mechanics class, they found
alternative ways to learn. And like Susan's crafts or
Wallace's singing, they found ways to enjoy their
other talents.
Even though a learning disability doesn't
disappear, given the right types of educational
experiences, people have a remarkable ability to
learn. The brain's flexibility to learn new skills is
probably greatest in young children and may diminish
somewhat after puberty. This is why early
intervention is so important. Nevertheless, we retain
the ability to learn throughout our lives. In many
cases, an adult with dyslexia can learn to read. Even
though learning disabilities can't be cured, there is
still cause for hope. Because certain learning
problems reflect delayed development, many children
do eventually catch up. Of the speech and language
disorders, children who have an articulation or an
expressive language disorder are the least likely to
have long-term problems. Despite initial delays, most
children do learn to speak. For people with dyslexia,
the outlook is mixed. But an appropriate remedial
reading program can help learners make great strides.
With age, and appropriate help from parents and
clinicians, children with ADHD become better able to
suppress their hyperactivity and to channel it into
more socially acceptable behaviors. As with Dennis,
the problem may take less disruptive forms, such as
fidgeting. Can an adult be helped? For example, can
an adult with dyslexia still learn to read? In many
cases, the answer is yes. It may not come as easily
as for a child. It may take more time and more
repetition, and it may even take more diverse
teaching methods. But we know more about reading and
about adult learning than ever before. We know that
adults have a wealth of life experience to build on
as they learn. And because adults choose to learn,
they do so with a determination that most children
don't have. A variety of literacy and adult education
programs sponsored by libraries, public schools, and
community colleges are available to help adults
develop skills in reading, writing, and math. Some of
these programs, as well as private and nonprofit
tutoring and learning centers, provide appropriate
programs for adults with LD.
What aid does the Government
offer?
As of 1981, people with learning disabilities came
under the protection of laws originally designed to
protect the rights of people with mobility handicaps.
More recent Federal laws specifically guarantee equal
opportunity and raise the level of services to people
with disabilities. Once a learning disability is
identified, children are guaranteed a free public
education specifically designed around their
individual needs. Adolescents with disabilities can
receive practical assistance and extra training to
help make the transition to jobs and independent
living. Adults have access to job training and
technology that open new doors of opportunity.
Increased services, equal opportunity The Individuals
with Disabilities Education Act of 1990 assures a
public education to school-aged children with
diagnosed learning disabilities. Under this act,
public schools are required to design and implement
an Individualized Educational PrOgram tailored to
each child's specific needs. The 1991 Individuals
with Disabilities Education Act extended services to
developmentally delayed children down to age 5. This
law makes it possible for young children to receive
help even before they begin school. Another law, the
Americans with Disabilities Act of 1990, guarantees
equal employment opportunity for people with learning
disabilities and protects disabled workers against
job discrimination. Employers may not consider the
learning disability when selecting among job
applicants. Employers must also make "reasonable
accommodations" to help workers who have
handicaps do their job. Such accommodations may
include shifting job responsibilities, modifying
equipment, or adjusting work schedules.
By law, publicly funded colleges and universities
must also remove barriers that keep out disabled
students. As a result, many colleges now recruit and
work with students with learning disabilities to make
it possible for them to attend. Depending on the
student's areas of difficulty, this help may include
providing recorded books and lectures, providing an
isolated area to take tests, or allowing a student to
tape record rather than write reports. Students with
learning disabilities can arrange to take college
entrance exams orally or in isolated rooms free from
distraction. Many colleges are creating special
programs to specifically accommodate these students.
Programs like these made it possible for Dennis to
attend and succeed in college. The HEATH Resource
Center, sponsored by the American Council on
Education, assists students with learning
disabilities to identify appropriate colleges and
universities. Information on the HEATH center and
related organizations appears at the end of this
brochure. Public agency support Effective service
agencies are also in place to assist people of all
ages. Each state department of education can help
parents identify the requirements and the process for
getting special education services for their child.
Other agencies serve disabled infants and preschool
children. Still others offer mental health and
counseling services.
The National Information Center for Children and
Youth can provide referrals to appropriate local
resources and state agencies. Counselors at each
state department of vocational rehabilitation serve
the employment needs of adolescents and adults with
learning disabilities. They can refer adults to free
or subsidized health care, counseling, and high
school equivalence (GED) programs. They can assist in
arranging for job training that sidesteps the
disability. For example, a vocational counselor
helped Wallace identify his aptitude for car repair.
To work around Wallace's language problems, the
counselor helped locate a job-training program that
teaches through demonstrations and active practice
rather than lectures. State departments of vocational
rehabilitation can also assist in finding special
equipment that can make it possible for disabled
individuals to receive training, retain a job, or
live on their own. For example, because Dennis
couldn't read the electronics manuals in his new job,
a vocational rehabilitation counselor helped him
locate and purchase a special computer that reads boo
ks aloud.
Finally, state-run protection and advocacy
agencies and client assistance programs serve to
protect these fights. As experts on the laws, they
offer legal assistance, as well as information about
local health, housing, and social services. What hope
does research offer? Sophisticated brain imaging
technology is now making it possible to directly
observe the brain at work and to detect subtle
malfunctions that could never be seen before. Other
techniques allow scientists to study the points of
contact among brain cells and the ways signals are
transmitted from cell to cell. With this array of
technology, NIMH is conducting research to identify
which parts of the brain are used during certain
activities, such as reading. For example, researchers
are comparing the brain processes of people with and
without dyslexia as they read. Research of this kind
may eventually associate portions of the brain with
different reading problems. Clinical research also
continues to amass data on the causes of learning
disorders. NIMH grantees at Yale are examining the
brain structures of children with different
combinations of learning disabilities. Such research
will help identify differences in the nervous system
of children with these related disorders. Eventually,
scientists will know, for example, whether children
who have both dyslexia and an attention disorder will
benefit from the same treatment as dyslexic children
without an attention disorder. Studies of identical
and fraternal twins are also being conducted.
Identical twins have the same genetic makeup, while
fraternal twins do not. By studying if learning
disabilities are more likely to be shared by
identical twins than fraternal twins, researchers
hope to determine whether these disorders are
influenced more by genetic or by environmental
factors. One such study is being conducted by
scientists funded by the National Institute of Child
Health and Human Development. So far, the research
indicates that genes may, in fact, influence the
ability to sound out words.
By studying if learning disabilities are more
likely to be shared by identical twins than fraternal
twins, researchers hope to determine whether these
disorders are influenced more by genetic or by
environmental factors. Animal studies also are adding
to our knowledge of learning disabilities in humans.
Animal subjects make it possible to study some of the
possible causes of LD in ways that can't be studied
in humans. One NIMH grantee is researching the
effects of barbiturates and other drugs that are
sometimes prescribed during pregnancy. Another
researcher discovered through animal studies that
certain prenatal viruses can affect future learning.
Research of this kind may someday pinpoint prenatal
problems that can trigger specific disabilities and
tell us how they can be prevented. Animal research
also allows the safety and effectiveness of
experimental new drugs to be tested long before they
can be tried on humans. One NIH-sponsored team is
studying dogs to learn how new stimulant drugs that
are similar to Ritalin act on the brain. Another is
using mice to test a chemical that may counter memory
loss. This accumulation of data sets the stage for
applied research. In the coming years, NIMH-sponsored
research will focus on identifying the conditions
that are required for learning and the best
combination of instructional approaches for each
child. Piece by piece, using a myriad of research
techniques and technologies, scientists are beginning
to solve the puzzle.
As research deepens our understanding, we approach
a future where we can prevent certain brain and
mental disorders, make valid diagnoses, and treat
each effectively. This is the hope, mission, and
vision of the National Institute of Mental Health.
What are sources of information and support? Several
publications, organizations, and support groups exist
to help individuals, teachers, and families to
understand and cope with learning disabilities. The
following resources provide a good starting point for
gaining insight, practical solutions, and support.
Further information can be found at libraries and
book stores. Publications Books for children and
teens with learning disabilities Fisher, G., and
Cummings, R., The Survival Guide for Kids with LD.
Minneapolis: Free Spirit Publishing, 1990. (Also
available on cassette) Gehret, J. Learning
Disabilities and the Don't-Give-Up-Kid. Fairport, NY:
Verbal Images Press, 1990. Janover, C. Josh: A Boy
with Dyslexia. Burlington, VT: Waterfront Books,
1988. Landau, E. Dyslexia. New York: Franklin Watts
Publishing Co., 1991. Marek, M. Different, Not Dumb.
New York: Franklin Watts Publishing Co., 1985.
Levine, M. Keeping A Head in School: A Student's Book
about Learning Abilities and Learning Disorders.
Cambridge, MA: Educators Publishing Services, Inc.,
1990. Books for adults with learning disabilities
Adelman, P., and Wren, C. Learning Disabilities,
Graduate School, and Careers: The Student's
Perspective. Lake Forest, IL: Learning Opportunities
Program, Barat College, 1990. Cordoni, B. Living with
a Learning Disability. Carbondale, IL: Southern
Illinois University Press, 1987. Kravets, M., and
Wax, I. The K& W Guide: Colleges and the Learning
Disabled Student. New York: Harper Collins
Publishers, 1992. Magnum, C., and Strichard, S., eds.
Colleges with Programs for Students with Learning
Disabilities. Princeton, NJ: Petersons Guides, 1992.
Books for parents Greene, L. Learning Disabilities
and Your Child: A Survival Handbook. New York:
Fawcett Columbine, 1987. Novick, B., and Arnold, M.
Why Is My Child Having Trouble in School? New York:
Villard Books, 1991. Silver, L. The Misunderstood
Child: A Guide for Parents of Children with Learning
Disabilities: 2d ed. Blue Ridge Summit, PA: Tab
Books, 1992. Silver, L. Dr. Silver's Advice to
Parents on Attention-Deficit Hyperactivity Disorder.
Washington, DC: American Psychiatric Press, 1993.
Vail, P. Smart Kids with School Problems. New York:
EP Dutton, 1987. Weiss, E. Mothers Talk About
Learning Disabilities. New York: Prentice Hall Press,
1989. Books and pamphlets for teachers and
specialists Adelman, P., and Wren, C. Learning
Disabilities, Graduate School, and Careers. Lake
Forest, Learning Opportunities Program, Barat
College, 1990. Silver, L. ADHD: Attention
Deficit-Hyperactivity Disorder, Booklet for Teachers.
Summit, NJ: CIBA-GEIGY, 1989. Smith, S. Success
Against the Odds: Strategies and Insights from the
Learning Disabled. Los Angeles: Jeremy Tarcher, Inc.,
1991. Wender, P. The Hyperactive Child, Adolescent,
and Adult. Attention Disorder through the Lifespan.
New York: Oxford University Press, 1987.
Related pamphlets available from NIH Facts About
Dyslexia National Institute of Child Health and Human
Development Building 31, Room 2A32 9000 Rockville
Pike Bethesda, MD 20892 (301) 496-5133 Developmental
Speech and Language Disorders -- Hope through
Research National Institute on Deafness and Other
Communicative Disorders P.O. Box 37777 Washington, DC
20013 (800) 241-1044 Support Groups and Organizations
American Speech-Language-Hearing Association 10801
Rockville Pike Rockville, MD 20852 (800) 638-8255
Provides information on speech and language
disorders, as well as referrals to certified
speech-language therapists. Attention Deficit
Information Network 475 Hillside Avenue Needham, MA
02194 (617) 455-9895 Provides up-to-date information
on current research, regional meetings. Offers aid in
finding solutions to practical problems faced by
adults and children with an attention disorder.
Candlelighters Childhood Cancer Foundation 7910
Woodmont Avenue, Suite 460 Bethesda, MD 20814 (800)
366-2223 Provides information and support for
children treated for cancer who later experience
learning disabilities. Center for Mental Health
Services Office of Consumer, Family, and Public
Information 5600 Fishers Lane, Room 15-81 Rockville,
MD 20857 (301) 443-2792 This new national center, a
component of the U.S. Public Health Service, provides
a range of information on mental health, treatment,
and support services. Children with Attention Deficit
Disorders (CHADD) 499 NW 70th Avenue, Suite 308
Plantation, FL 33317 (305) 587-3700 Runs support
groups and publishes two newsletters concerning
attention disorders for parents and professionals.
Council for Exceptional Children 11920 Association
Drive Reston, VA 22091 (703) 620-3660 Provides
publications for educators. Can also provide referral
to ERIC Clearinghouse for Handicapped and Gifted
Children. Federation of Families for Children's
Mental Health 1021 Prince Street Alexandria, VA 22314
(703) 684-7710 Provides information, support, and
referrals through federation chapters throughout the
country. This national parent-run organization
focuses on the needs of children with broad mental
health problems. HEATH Resource Center American
Council on Education 1 Dupont Circle, Suite 800
Washington, DC 20036 (800) 544-3284 A national
clearinghouse on post-high school education for
people with disabilities.
Learning Disabilities Association of America 4156
Library Road Pittsburgh, PA 15234 (412) 341-8077
Provides information and referral to state chapters,
parent resources, and local support groups. Publishes
news briefs and a professional journal. Library of
Congress National Library Service for the Blind and
Physically Handicapped 1291 Taylor Street, NW
Washington, DC 20542 (202) 707-5100 Publishes Talking
Books and Reading Disabilities, a factsheet outlining
eligibility requirements for borrowing talking books.
National Alliance for the Mentally Ill Children and
Adolescents Network (NAMICAN) 2101 Wilson Boulevard,
Suite 302 Arlington, VA 22201 (800) 950-NAMI Provides
support to families through personal contact and
support meetings. Provides education regarding coping
strategies; reading material; and information about
what works--and what doesn't. National Association of
Private Schools for Exceptional Children 1522 K
Street, NW Suite 1032 Washington, DC 20005 (202)
408-3338 Provides referrals to private special
education programs. National Center for Learning
Disabilities 381 Park Avenue South, Suite 1420 New
York, NY 10016 (212) 687-7211 Provides referrals and
resources. Publishes "Their World" magazine
describing true stories on ways children and adults
cope with LD. National Information Center for
Children and Youth with Disabilities P.O. Box 1492
Washington, DC 20013 (800) 999-5599 Publishes
newsletter, arranges workshops. Advises parents on
the laws entitling children with disabilities to
special education and other services. Orton Dyslexia
Society Chester Building, Suite 382 8600 LaSalle Road
Baltimore, MD 21286-2044 (410) 296-0232 Answers
individual questions on reading disability. Provides
information and referrals to local resources.
To arrange for special college entrance testing
for LD adults, contact: ACT Special Testing (319)
337-1332 SAT Scholastic Aptitude Test (609) 771-7137
GED (202) 939-9490.
All material in this publication is free of
copyright restrictions and may be copied, reproduced,
or duplicated without permission from NIMH; citation
of the source is appreciated. This booklet was
written by Sharyn Neuwirth, M.Ed., an education
writer and instructional designer in Silver Spring,
MD. Scientific information and review was provided by
NIMH staff members L. Eugene Arnold, M.D.; F. Xavier
Castellanos, M.D.; and Judith Rumsey, Ph.D. Also
providing review and assistance were Marcia Henry,
Ph.D., Orton Dyslexia Society; Reid Lyon, Ph.D.,
National Institute of Child Health and Human
Development; Jean Petersen, Learning Disabilities
Association; and Larry B. Silver, M.D., Georgetown
University. Editorial direction was provided by Lynn
J. Cave, NIMH.