Do you have Crest Syndrome or know of someone who does? Here you will find links and friends to help with some of life's tough choices and difficulties. You are not alone. I call this Living and Enjoying because I made my mind up a long time ago with God's help to live and enjoy life.
A note from Dee's husband. Dee passed away December 9th 2008. She wished for the help she was able to provide to continue. I will continue her site and work as she wished. Ill post some info on her soon for those who wish to know about Dee. She was a character you would never forget.
What is Crest?
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C |
Calcinosis (kal-sin-oh-sis) - happens when small white calcium lumps form under the skin. This is caused by scleroderma and NOT caused by too much calcium in your diet. |
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R |
Raynauds (ray-nodes) Phenomenon - is a problem of poor blood flow to fingers and toes. Blood flow decreases because blood vessels in these areas become narrow for a short time, in response to cold or to emotional stress. |
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E |
Esophageal Dysfunction - the digestive system includes the mouth, esophagus, stomach, and bowels. Scleroderma can weaken the esophagus and the bowels. It can also build-up of scar tissue in the esophagus, which narrows the tube. |
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S |
Sclerodactyly - (sklare-oh-dack-till-ee) - means "scleroderma of the digits" (fingers and toes). The skin becomes hard and shiny and there is difficulty in bending. |
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T |
Telangiectasia - (tah-lan-jec-tay-shah) - happens when tiny blood vessels near the surface of the skin show through the skin. Small reddish spots appear on fingers, palms, face, lips, and/or tongue. |
Each newly-diagnosed scleroderma patient, a family
member, or friend may receive a new patient information packet at no charge by
calling the Scleroderma Foundation.
(800) 722-HOPE
Email me by clicking HERE I just LOVE getting EMAIL
A great place to get treatment
Sites for the Midwest Minnesota Area and the consultant on this web site.
One of the best Authors in Minnesota and a good friend. Your gonna love this site!
One thing I get a lot of enjoyment out of, are my cats Cagney & Lacey. Are you a cat lover too?