The National Institute of Neurological Disorders and Stroke, a component of the National Institutes of Health, is the leading federal supporter of research on brain and nervous system disorders. The Institute also sponsors an active public information program and can answer questions about diagnosis, treatment, and research related to cerebral palsy.
*In addition, a number of private organizations offer a variety of services and information that can help those affected by cerebral palsy. They include:
Epilepsy Foundation
4351 Garden City Drive
Landover, MD 20785
(301) 459-3700
(800) EFA-1000
www.epilepsyfoundation.org
This foundation sponsors programs for patient and public education, legal and government affairs, and employment training and placement. The foundation also supports research, maintains the National Epilepsy Library (800-EFA-4050), publishes a variety of patient/family and professional education materials, and sponsors affiliates.
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
(914) 428-7100
(800) MODIMES (663-4637)
www.modimes.org
This foundation funds research, medical services, public education, and genetic counseling. Resources include fact sheets, brochures, educational kits, and audiovisual materials.
Easter Seals
230 West Monroe Street
Suite 1800
Chicago, IL 60606-4802
(312) 726-6200
(800) 221-6827
www.easter-seals.org
This organization includes state and local affiliates and operates facilities and programs across the country. They offer a range of rehabilitation services, research and public education programs, and assistive technology services. Their programs also include therapy, counseling, training, social clubs, camping, transportation, and referrals. In addition, the society sponsors a grants program for research on disabling conditions and rehabilitation, provides low-cost booklets and pamphlets to the public, and publishes a bimonthly journal.
United Cerebral Palsy Associations, Inc. and
The United Cerebral Palsy Research and Educational Foundation
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) USA-5UCP (872-5827)
www.ucpa.org
This coalition of associations provide family support, legislative advocacy, public information and education, and training, specifically for issues of importance to those who have cerebral palsy. It also publishes newsletters and various brochures and pamphlets. The UCP Research and Educational Foundation supports research to prevent cerebral palsy and develop therapies to improve the quality of life for those affected by this disorder.
