


April
2001
Wow,
I went a long time without updating my big guys story didn't I?
Well needless to say a lot of things have happened during the
past year in the life of Hayden! Let's see I'll try to hit the
highlights at least without running on too long! Hayden started
the preschool 3 year old program this past fall at a local private
Christian school and he's come out of his shell so much during
the experience. He can do so many things now..like ride a bike,
speaking in complete sentences like an adult lol, feed himself,
say his alphabet AND recognize all the letters on sight, he can
count to 50, spell some simple words, and turn on the puter lol.
Oh and most importantly he's been potty trained for a year now!
Hayden's been infection free for nearly 2 years..we'll hit that
mark come July! His meds are really doing the trick and he is
thriving like any three year old. I'm breathing a huge sigh of
relief each day and as always so thankful to God that he is healthy!
Hayden and I are closely bonded..he constantly tells me that I'm
his bestest friend and well as a mommy those words are music to
my ears! I'm so proud to be a SAHM..what a wonderful life :)
Let me list a few of Hayden's favorite things as of now :) I wish
that I had done this from day one of this site so that I would
have a sort of reference, but I'll do it from now on!
Hayden
loves: trucks, tractors, riding his bike and four wheeler, and
playing in his sandbox. Bob the Builder, Dora the Explorer, and
Dragon Tales are his favorite television programs. His all time
favorite meal of the moment is Chicken McNugget Happy Meals and
spaghetti.
Hayden
doesn't like: getting his hair washed, staying inside, bugs, and
bedtime!
March
2000
Hayden
has taken on the new year with a bang! He is healthy, growing,
and more precious than ever. Seems that he's adding at least five
new words to his vocabulary each and every day, but his favorite
word remains "twactor"! He loves to ride on the tractor with his
daddy or Paw Paw any chance that he gets! Just this week he got
moved up to the "big boys room" at his daycare..along with his
best buddy in the world "Trace". Those two together are quite
the little bandits..always into mischief. I watch Hayden asserting
his independance more each day and while one part of me finds
myself missing the baby of yesterday..the other part has pride
in the boy of tomorrow that I see emerging from within him. He's
still my pride and my heart..as well as everyone else's that ever
comes into contact with him.
July
1999
Hayden
had another fight against pneumonia earlier this month, we were
at Scottish Rite Children's Hospital in Atlanta with him for 18
days. He is now at home still on IV antibiotics until the 21st
of August and he seems so much better than I ever thought possible
considering the extent of his illness. Children really are very
resilient, it amazes me! This is the first "major" complication
that we have had since 1997 and I feel very fortunate in that.
We'll keep praying that God will keep our angel well!
November
23-December 24, 1997
Thanksgiving
came and Hayden grew weaker before my eyes. He had received transfusions
of blood while in the neonatal unit of the hospital, but he still
wasn't strong. I took him in for an emergency check up because
his fever was raging and we went back into the hospital on November
24, 1997. He had a UTI and pneumonia~both very serious for such
a small infant, but especially so to one that had already been
through so much! I stayed with him 24-7, holding him and watching
the staff inject and poke til I often wanted to scoop him up and
run away! I tried to keep in mind that what they were doing was
for his benefit~although when it is happening all you can think
of is how much pain he is going through~Definitely a case of "the
treatment is worse than the illness". We went home on a Thursday
evening at the beginning of December, but were back in the ER
the following Saturday morning. Finally Christmas Eve rolls around
and I am very depressed about how I know he'll spend his very
first Christmas. The doctor comes in and gives us the best gift
we could have received~Hayden's white blood cell counts are close
to normal and we go home! ~This is our last visit to the hospital
so far~ We learned in the Spring of 1998 that Hayden has Chronic
Granulomatous Disease (CGD), here is the link if you want to learn
more...CGD.
October
15-20, 1997
Let
me begin by telling you a little about my "angel baby" Hayden!
He came into the world on October 15, 1997. His full name is William
Hayden Prince~William after his father~Hayden after a little boy
that I had as a student in my first job as a speech pathologist.
Hayden is my heart and soul~as I watch him grow and learn new
things I am truly amazed! Hayden is my miracle~after a few months
of pregnancy my OB informed me that I had Placenta Previa and
that we would deliver Hayden at least 4 wks early to avoid the
possibility of my going into labor.I was told to stay in bed and
get plenty of rest~easier said than done I can assure you! I could
go on for days about the high blood pressure, water retention,
and the grueling procedures that I had to undergo for my miracle,
but it all seems so unimportant now that I have my little "gift"!
I will however tell you about the delivery and the events which
followed~mainly in hopes that if someone out there is going through
anything similar that it will give you information and hope! I
had an amniocentesis performed one week prior to Hayden's actual
arrival, we learned that his lungs were not developed so we had
to wait another LONG week to meet him! Well, the big day finally
arrived and off to the operating room I went (with poor William
in tow). It was supposed to be a very routine procedure~but it
did not turn out that way! The doctor did not perform an ultrasound
on me to determine "exactly"where Hayden was, he just began to
cut where he believed was the right place. With Placenta Previa~the
placenta covers the uterus making natural delivery almost impossible.
The doctor cut right through the placenta, hence Hayden's lifeline,
and we both lost A LOT of blood! They took Hayden off to neonatal
ICU and I didn't get to see him until the following day. It was
the most horrible night of my life, but I had no idea what I would
face the following morning when I saw him for the first time.
There he was in an incubator~the child that I had sang to, dreamed
of, and loved while he was safe within me~with tubes and needles
coming out of his tiny little body. The tears came fast and furious
why was this happening to me? I now know it was God's plan~I feel
he used this first obstacle to test my strength and I found a
stronger person within me, one I never knew existed. I dried my
eyes and stayed with Hayden as long as the staff would allow~loving
him and praying,oh did I ever pray! Very much to our surprise
and thanks to the prayers~we were able to take Hayden home on
October 20, 1997~just one week after this ordeal! We have been
so blessed by him that the trials and pain were all worth it!



Thanks
for taking the time to read about my special guy :) I'm so proud
of him!
If you have any questions about CGD or maybe you have a child
that is ill please
feel free to contact me..I
can totally relate and will gladly listen!


Thanks
a lot for not taking my stuff off this page :)
I like my stuff cause well..it's my stuff so help me keep it that
way.
You can find the graphics used here at the GC listed below,
she has some really cool things so pay her a visit!
