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COLOBOMA |
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This group is open to people that have Coloboma, their family and friends. People of all ages from all over the world may belong to the group. Many new members are parents with newborns that have been diagnosed with Coloboma. Please respect other people�s ideas, feelings and beliefs.
Disclaimer
The information contained on site is intended for use as a guide to
Coloboma and how different people deal with the conditon. We hope
you find its contents useful. People that have Coloboma or have a
family member or close friend with Coloboma have put this information
together. Some of the information was gathered from various
professional sources. Other information is from life experiences.
Remember that each person is different and this information should
not be used to make a diagnosis. Only a qualified ophthalmologist
should make diagnosis.
Remember
Anyone can claim to be a doctor on the Internet, even set up their
own web site. If someone claims to be a medical professional, they
should provide an address and phone number so members can contact
them off list and check out there credentials if they wish to.
By participating in this group, you are agreeing to the following terms and conditions:
- You may not post any message or material commonly known as "SPAM". For the purpose of this Group SPAM is defined as unsolicited, blatant commercial postings, and in particular, those unrelated to the group.
- You may not post any message or material that is: offensive, threatening, abusive, indecent, obscene or pornographic.
- The Group Moderator will remove any material that is inappropriate, offensive, or otherwise unsuitable for the group. Repeated offences will result in the member being banned from the group.
- When posting medical information please provide a link to the web site where you found it. If there is no website for the information please provide a name and contact information.
- Anyone giving out medical advice and claiming to be a medical professional will be banned from the group. Medical professionals do not give out free medical advice over the Internet.
New Members
Since we are a closed group pending members MUST send in an introduction before they will be allowed into the group. An
introduction should include a first name, how Coloboma affects you, a
family member or friend. For members safety, only tell what country
or state you are from. This introduction will be posted in the files
section under "Coloboma Group Members."
Privacy Policy
Privacy is important to us all, that is why this is a closed group. Only
members of this group have access to its content and archives. Member�s
postings to the group will be kept within the group. I personally
recommend not giving out personal information: last name, address phone
number, etc. If you wish to give a member this kind of information,
please e-mail them privately.
Charlie Web - Moderator
