Last Updated April 18, 2005
General
Resources
American Indian and
Alaska Native Resources
Resources for People
with Disabilities
General Resources
Agency for Healthcare Research and Quality This Public Health Service agency funds research projects on improving healthcare quality, pain management, domestic violence, children's health, elderly health, prevention, health promotion and other key topics.
Alliance for Health Reform A non-partisan, non-profit group that provides objective health-related information in a number of formats to journalists, elected officials and their staffs, and other shapers of public opinion.
American Academy of Family Physicians. AAFP is the national association of family doctors, with more than 93,100 members in 50 states, D.C., Puerto Rico, the Virgin Islands, and Guam. The Academy was founded in 1947 to promote and maintain high quality standards for family doctors who are providing continuing comprehensive health care to the public.
American Dietetic Association. Members include clinical and community dietetics professionals, consultants, food service managers, educators, researchers, dietetic technicians and students representing a wide range of practice areas and special interests, including: public health; sports nutrition; medical nutrition therapy; diet counseling for weight control, cholesterol reduction, diabetes, renal and other health concerns; vegetarianism, food service management in business, hospitals, restaurants, long-term care facilities, and education systems; education of other health care professionals; and research.
American Medical Association . Provides information that will help patients lead healthy lives and become active participants in their health care, from finding a doctor or hospital to nutritional and fitness articles, to content about specific medical diseases and conditions. This section also contains News From the AMA and information about upcoming meetings and events.
American Public Health Association.
Association of Maternal and Child Health Programs.
Association of State and Territorial Dental Directors
Campaign for Better Health Care: Call 217-352-5600.
Campaign for Tobacco-Free Kids.
Center for Health and Health Care in Schools Based at Georgetown University, the Center tests model programs to expand dental and mental health services to children through school-based health centers; analyzes policy options for organizing and financing health programs in schools; advises government officials and leaders in schools and health care institutions on how to provide cost-effective, accountable school health programs; researches issues and publicizes findings on the effectiveness of various school-based health programs and services; informs policymakers and the public on alternative approaches to school-based health programs and services through the CHHCS website, listserv, e-journal, and print publications.
Center for Health Care Strategies. Nonprofit, policy resource center promoting high quality health care services for low-income populations and people with chronic illnesses and disabilities. Conducts policy analysis, tests model products and provides "real world" training and technical assistance to purchasers of publicly-financed health care, managed care organizations and consumer groups.
Centers for Disease Control and Prevention. Develops and applies disease prevention and control, environmental health, and health promotion and education activities designed to improve the health of the people of the United States. CDC, located in Atlanta, Georgia, is an agency of the Department of Health and Human Services.
Children's Defense Fund - H ealthy Start.
Children's National Medical Center Comprises seven Centers of Excellence:
The Center for Cancer and Blood Disorders
The Diana L. and Stephen A. Goldberg Center for Community Pediatric Health
The Center for Complex Diseases
The Center for Heart and Kidney Disease
The Center for Hospital-based Specialties
The Center for Neuroscience and Behavioral Medicine
The Center for Surgical Care
ConsumerLab.com Evaluates nutritional supplements and products.
Directory of State Title V CSHCN Programs: Eligibility Criteria and Scope of Services Published by Institute for Child Health Policy's Center for Policy and Partnership/Maternal and Child Health Bureau.
Early Child Health Outreach. Works to make sure that Tennessee children under age 6 get their free well-child TennCare check-ups and treatment if a problem is found. Teaches parents how to appeal if TennCare won't give their children the care they need.
Foundation for Accountability. Creates tools that help people understand and use health care quality information, develops consumer-focused quality measures, supports public education about health care quality, supports efforts to gather and provide quality information, and encourages health policy to empower and inform consumers.
Frontier Education Center: National Clearinghouse for Frontier Communities Uses Healthy Communities model to address lack of access to health care and services in frontier communities.
HealthandAge.com Novartis Foundation for Gerontology site offers latest research articles and book supplements.
Centers for Medicare and Medicaid Services. Federal agency that administers Medicare, Medicaid and the State Children's Health Insurance Program (SCHIP).
Health Care for All: Call 617-350-7279.
Health Consumer Alliance. HCA is a California partnership of consumer assistance programs operated by community-based legal services organizations with the common mission to help low-income people obtain essential health care. HCA's local Health Consumer Centers operate in six counties that, together, include 60% of poor Californians: Fresno, Los Angeles, Orange, San Diego, San Francisco and San Mateo.
Health Grades Medicare data on medical services providers in 14 states.
Health Resources and Services Administration, Maternal and Child Health Bureau, Division of Child, Adolescent and Family Health
Healthy Mothers, Healthy Babies Coalition.
Healthy People 2010 Site has copies of Healthy People 2010 and Understanding and Improving Health.
Injury Prevention Web Sponsored by Center for Injury Prevention Policy & Practice, and the State and Territorial Injury Prevention Directors' Association.
Institute for Family-Centered Care. Central resource for both family members and members of the health care field. This site shares information, facilitates problem-solving and promotes dialogue among individuals and organizations working toward family-centered care.
Maine Consumers for Affordable Health Care: Call 207-622-7083.
Maine Rural Health Research Center.
Managed Care Technical Assistance Center Health Resources and Services Administration site for HRSA grantees.
Medicaid 101 - The Basics of America's Biggest Health Program, Web Broadcast provides basic information, contacts, and resources on the Medicaid Program.
National Academy for State Health Policy Conducts research into areas of vital importance to states and those who depend on them for health coverage and protection.
National Association of School Nurses.
National Committee on Quality Assurance. NCQA is an independent, non-profit organization which evaluates and reports on the quality of the nation’s managed care organizations. It provides information useful when deciding which health plan to choose for individual, family, or employee coverage.
National Guideline Clearinghouse Guidelines for assessment and treatment of hundreds of diseases and medical conditions.
National Institutes of Health:
National Cancer Institute (NCI) .
National Center for Alternative and Complementary Medicine at the National Institutes of Health (NIH) is dedicated to exploring complementary and alternative healing practices in the context of rigorous science; training CAM researchers;and disseminating authoritative information.
National Eye Institute (NEI) .
National Heart, Lung, and Blood Institute (NHLBI) .
National Human Genome Research Institute (NHGRI).
National Institute on Aging (NIA).
National Institute of Child Health and Human Development (NICHD)
MedlinePlus More "user-friendly" than the National Library of Medicine's Medline database -- MedlinePlus offers less-technical information on medical conditions. Search results provide links to additional resources.
National Patient Air Transport Helpline (Provides information about free transportation to treatment and research sites, including information about charitable ticket programs and coordination of transportation to research studies.) Call 800-296-1217.
National Rural Health Association.
National Women's Health Information Center of the U.S. Department of Health and Human Services.
Opportunities to Use Medicaid in Support of Access to Maternal and Child Health Services Health Resources and Services Administration primer to help state and local health officials work with their Medicaid officials.
Oregon Health Action Campaign: Call 503-246-6653.
Pennsylvania Health Law Project: Call 215-625-3663.
Prescription Drug Assistance Programs:
NeedyMeds.com Provides information about patient assistance programs and other programs designed to help those who can't afford their medicines.
Pharmaceutical Research and Manufacturers of America Provides the Directory of Prescription Drug Patient Assistance Programs. These programs provide prescription medicines free of charge to physicians whose patients might not otherwise have access to necessary medicines. Under the entry for each program is information about how to make a request for assistance, what prescription medicines are covered, and basic eligibility criteria. Also see http://www.helpingpatients.org
Volunteers in Health Care: RxAssist: Designed to help health care providers locate programs for which their patients might qualify.
Research and Policy Center for Childhood and Adolescence.
Rural Assistance Center, at the Center for Rural Health. Serves as a rural health and human services information portal to help rural communities and other rural stakeholders access the full range of available programs, funding, and research.
Society for Public Health Education .
Sudden Infant Death Syndrome Alliance.
Tennessee Health Care Campaign: Call: 615-227-7551.
www.TheDesk.info Online Medicaid reference desk geared to people with cognitive disabilities, families, advocates, legislators, policy makers, state officials, and service providers.
Understanding Medicaid Home and Community-based Services: A Primer US Department of Health and Human Services report.
American Indian and Alaska Native Resources
Alaska Native Health Board. Promotes the spiritual, physical, mental, social, and cultural well-being and pride of Alaska Native people.
Association of American Indian Physicians AAIP's mission is to pursue excellence in Native American health care by promoting education in the medical disciplines, honoring traditional healing practices and restoring the balance of mind, body, and spirit.
Association of Native American Medical Students. ANAMS is a student organization representing Native American graduate health professions students throughout North America. Membership comprises Native American students enrolled in medical school or in the allied health professions of dentistry, veterinary medicine, optometry, podiatry, and pharmacy.
American Medical Association - Cultural Competence Compendium .
Association of Clinicians for the Underserved Addresses issues of health care access and quality by enhancing support for clinicians who serve underserved populations; providing access to information relevant to clinical practice; providing opportunities for clinicians to interact and communicate with colleagues; promoting research to increase understanding of underserved practice; and increasing opportunities for relevant education and training on providing health care to underserved populations.
Barbara Jordan
Health Policy Scholars Program Sponsored by the Henry J. Kaiser Family
Foundation, the program brings talented African American, Latino,
Asian/Pacific Islander and American Indian/Alaska Native
college seniors and
recent graduates to Washington, DC, to work in congressional offices and learn
about health policy. The application deadline is January 30, 2004.
California Rural Indian Health Board.
Cancer Information Resource Center and Learning Exchange (Native C.I.R.C.L.E.) .
Caregiving.com Resource kits and supports for people providing care for family members.
Centers for Disease Control and Prevention Public Health Fellowship Program - A collaboration of CDC, Emory University School of Public Health and Morehouse School of Medicine to encourage and prepare junior and senior undergraduate minority students in pursuing graduate study and careers in public health.) Call 404-639-3316.
Commonwealth Fund/Harvard University Fellowship Program in Minority Health Policy One-year program for physicians who have completed their residency (additional experience beyond residency preferred) combines an intensive year of training in health policy, public health, and management with special program activities on minority health issues. Applicants to the program complete academic work for a master's degree in public health or public administration and receive a $50,000 stipend, full tuition for a master's degree, health insurance, books, travel and related expenses, and financial assistance toward the support of a practicum project.
Community Voices Health care and health policy issues for the underserved.
Cross Cultural Health Care Program Addresses broad cultural issues, such as language barriers, that impact the health of individuals and families in ethnic minority communities in Seattle and nationwide.
Culture and Diversity Publication of the American Medical Student Association.
Health Care: Approaches to Address Racial and Ethnic Disparities, General Accounting Office Report GAO-03-862R, July 8, 2003.
Health Disparities Experienced by American Indians and Alaska Natives: Centers for Disease Control News Conference Telebriefing Transcript.
Health Promotion Program Dedicated to meeting the needs of Native American people for health promotion and wellness, HPP presents the annual Wellness & Women and the Wellness & Native Men conferences.
Health Promotion and Disease Prevention, Indian Health Service. The IHS Director's Prevention Initiative is currently working with tribes, tribal organizations, IHS staff, and health consultants to develop a systematic and comprehensive way to focus prevention activities on several Primary Prevention Focus Areas.
Hesperian Foundation Focuses on ethnic and migrant communities and distributes health education materials in English, Spanish, Portuguese and French. Publications include Where Women Have no Doctor.
Indian Health Service (IHS). IHS is the principal federal health care provider and health advocate for 1.5 million American Indians and Alaska Natives who belong to more than 550 federally recognized tribes in 35 states. Its goal is to assure that comprehensive, culturally-acceptable personal and public health services are available and accessible to American Indian and Alaska Native people. This site includes a directory of area offices and facilities.
Health Professions Preparatory, Pre-graduate and Indian Health Professions Scholarship Programs Deadline to apply for these Indian Health Service 2004 programs is February 28.
Indian Health Service Student Loan Repayment Program, Scholarship Programs & Recruitment Program The Student Loan Repayment Program, the IHS Scholarship Program, and the Health Professions Support Team/Recruitment Program increase the number of American Indians and Alaska Natives entering health professions and assure an adequate supply of health professionals entering IHS service and providing health care to tribes, tribal organizations, and urban Indian organizations.
Indians into Medicine Program University of North Dakota School of Medicine.
Intercultural Cancer Council Promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the U.S. and its territories.
Minority Health Professions Foundation Facilitates increase in representation and recognition of underrepresented minorities in medicine, dentistry, pharmacy and veterinary health professions.
Minority Nurse Resources and information pertaining to education, career development and minority health for the growing population of minority nurses in America.
Montana/Wyoming Area Indian Health Board.
National Center for Cultural Competence Increases the capacity of health care and mental health programs to design, implement and evaluate culturally and linguistically competent service delivery systems.
National Health Law Program. National public interest law firm that seeks to improve health care for America's working and unemployed poor, minorities, the elderly and people with disabilities. NHeLP serves legal services programs, community-based organizations, the private bar, providers and individuals who work to preserve a health care safety net for the millions of uninsured or underinsured low-income people.
National Indian Health Board Works to ensure that health care needs of all Tribal Governments are met with broad-based advocacy, cutting edge research, policy analysis, training and technical assistance.
National Indian Women's Health Resource Center National non-profit organization helps American Indian and Alaska Native women achieve optimal health and well being throughout their lives. The Center's Steering Committee represents tribal, urban and Indian Health Service operated programs. They are health providers, health planners, health administrators, and elected tribal leaders with a common concern for the health of Indian women.
National Institutes of Health -- National Center on Minority Health and Health Disparities Funds the following:
Emory University, Rollins School of Public Health, The Institute for Minority Health Research.
Maharishi University of Management, College of Maharishi Vedic Medicine, Center for Natural Medicine and Prevention Has recently been awarded an $8 million grant from the National Institutes of Health to establish a center of excellence for research in natural medicine and chronic diseases in the aging -- especially cardiovascular disease in high risk minority populations.
State University of New York at Albany, Center for Minority Health Research, Education and Training Multi-disciplinary research, education and training center addresses the disparity in health between communities of color and the majority population, seeks innovative methods for addressing race and ethnicity-based disparities in health, and collaborates with community leaders, organizations, and clinics. Projects study barriers to minority health care, the impact of managed care on minority populations, infectious and chronic diseases among minority groups, disease prevention and control, teen pregnancy and violence, and the socio-economic, institutional and cultural factors associated with minority populations.
University of California at Los Angeles, School of Public Health, Center for Diversity Enrichment The Diversity Enrichment Program addresses the needs of individuals from groups designated as underrepresented in the Public Health professions. The focus of the program is on facilitating admission to the School of Public Health and supporting students in completing their training in the degree programs.
University of California at San Francisco, Center for AIDS Prevention Studies, Collaborative HIV Prevention Research in Minority Communities This program is designed to assist investigators conducting HIV prevention research with ethnic minority communities.
University of Michigan, Center for Research on Ethnicity, Culture and Health Provides a forum for basic and applied public health research on relationships among ethnicity, culture, socioeconomic status and health. The Center develops new interdisciplinary frameworks for understanding these relationships while promoting effective collaborations among public health academicians, health providers, and local communities.
University of Wisconsin, Center for the Study of Race and Ethnicity in Medicine Focuses on the role of race and ethnicity in shaping physicians' and patients' expectations, beliefs, and attitudes; disparities in the effects of many diseases and conditions on racial and ethnic groups; and inequities in health care delivery. Conducts educational programs, research initiatives, and outreach activities.
University of North Carolina-Chapel Hill - Minority Health Project. (Works to improve the quality of available data on racial and ethnic populations, to expand the capacity of minority-health researchers to conduct statistical research and develop research proposals, and to foster a network of researchers in minority health.
National Minority AIDS Council
Native American Cancer Research Native American owned and operated non-profit organization implements cancer primary prevention, secondary prevention, risk reduction, screening (early detection), education, training, research, diagnoses, control, treatment, support, quality of life, and / or studies of cancer among Native Americans. Primary support is from federal agencies (e.g., the National Institutes of Health) and national organizations (e.g., the National Susan G. Komen Breast Cancer Foundation).
Native American Women's Health Education Resource Center Benefiting people locally (South Dakota), nationally and internationally, the Center's programs focus on domestic violence, AIDS prevention, child development and youth wellness, adult learning, environmental awareness and action, cancer prevention, fetal alcohol syndrome awareness, educational materials, diabetic nutrition, scholarships for Native American women, and reproductive health and rights.
Northwest Portland Area Indian Health Board. Home to the National Tribal Tobacco Prevention Network.
Oklahoma City Area Indian Health Service Office.
People with Disabilities on Tribal Lands: Education, Health Care, Vocational Rehabilitation, and Independent Living, Report from the National Council on Disability
Phoenix Area Indian Health Board.
Resources for Cross Cultural Health Care Clearinghouse of information on how to meet the language and cultural needs of minorities, immigrants, refugees and other diverse populations seeking health care.
Society of American Indian Dentists.
Tribal Connections in the Pacific Northwest Project Connects American Indian/Alaska Native communities to health resources on the Internet. Funded by the National Library of Medicine under a contract with the University of Washington. Additional funding has been awarded by the Bill and Melinda Gates Foundation.
"UNDERSTANDING DISABILITIES IN AMERICAN INDIAN AND ALASKA NATIVE COMMUNITIES: TOOLKIT GUIDE" National Council on Disability publication provides information about disabilities, Indian tribes, and resources. Also suggests ways to improve services, provide protections, and tap resources in local tribal communities for people with disabilities. Focuses primarily on health care, independent living, education, vocational rehabilitation, housing and transportation.
University of Oklahoma Health Sciences Center- Center for American Indian Health Research .
University of Oklahoma Health Sciences Center- Headlands Indian Health Careers Program.
University of Oklahoma Health Sciences Center- College of Dentistry - Native American Center of Excellence Consortium.
University of Oklahoma Health Sciences Center- Native American Prevention Research Center.
Urban Indian Centers and Disability Supports (fact sheet)
Resources for People with Disabilities
American Occupational Therapy Association.
American Physical Therapy Association.
Breast Health Access for Women with Disabilities Model of breast health care services designed to overcome barriers to accessible breast health care and meet the special needs of women with physical, visual and other disabilities.
Centers for Medicare and Medicaid Services
Emergency Evacuation Preparedness: Taking Responsibility for Your Safety. A Guide for People with Disabilities and Other Activity Limitations", available in pdf, html and Word formats.
Health Promotion for Women with Disabilities . This web site addresses issues shared by women with disabilities, regardless of the cause of their disability. Although not all information will apply to all women, the information can be useful to women who are interested in learning more about their own health and about ways to improve their health and quality of life.
Living Well under the Big Sky: Montana Disability and Health Project
MammaCare Breast Self-examination Program for Women who are Blind or Visually Impaired Commercial site features a patented, tactually accurate model with a ribbon "necklace" to keep the model correctly positioned during training. The model has raised markers to guide the woman while examining the model. The model contains small lumps that are virtually impossible to detect without training. The system includes an audiocassette and a descriptive video that teach proficient BSE through a series of carefully designed exercises, conducted first on the model and then on the woman herself. The kit also contains a large print booklet and Braille instructions.
National Association on Alcohol, Drugs and Disability Works to improve access to substance abuse services for people with disabilities, provides information on prevention and treatment, and facilitates networking of individuals and organizations.
National Center on Physical Activity and Disability.
National Chronic Care Coalition Organization of leading-edge health networks dedicated to transforming the delivery of chronic care services. Each shares a vision of integrated care for individuals with chronic health conditions, from the time of earliest condition awareness until problem resolution or death.
National Institutes of Health:
National Institute on Alcohol Abuse and Alcoholism (NIAAA).
National Institute of Allergy and Infectious Diseases (NIAID).
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
National Institute on Deafness and Other Communication Disorders (NIDCD).
People with Disabilities on Tribal Lands: Education, Health Care, Vocational Rehabilitation, and Independent Living, Report from the National Council on Disability
Rehabilitation Research and Training Center on Health and Wellness
www.TheDesk.info Online Medicaid reference desk geared to people with cognitive disabilities, families, advocates, legislators, policy makers, state officials, and service providers.
Women with Disabilities National Women's Health Information Center.
Original Source:
American Indian Disability Technical Assistance Center
The University of Montana Rural Institute:
A Center for Excellence in Disability Education, Research and Services
52 Corbin Hall, The University of Montana
Missoula, MT 59812-7056
Toll Free: 866 - 4 - AIDTAC (866-424-3822)
AIDTAC
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