![]() This is Lisa. |
She changed direction after substitute teaching and took a job working for Siemens.Since Siemens is a German based international corporation she has had the chance to travel,use the German, French and Italian languages that she studied and enjoys her work. No Mom could love and appreciate a daughter more than I love and appreciate Lisa. From the day she was born she brought a special spirit and light into our family that has blessed us all. She may not be perfect but she was perfect for us! She is lovely, sweet, smart and has a great sense of humor. Even though she is the baby of the family she has always been a wonderful 'big sister' to RJ and the best friend he has ever had. He misses her living at home but delights in hearing her over the telephone and she visits often since she lives local again(I feel the same way). Helping Lisa grow up helped me grow and I learned so much from her life and her education. I found I was interested in subjects that had put me to sleep in the past (History, Sociology, Literature, Psychology). Thanks to her I got to sew little smocked dresses, be a Girl Scout leader, make princess and angel costumes, buy lots of Barbie dolls, and take many Mom/Daughter trips (several to Disneyland and a very special one for me to New England to show her where I lived when I was a little girl). She allowed me to be a Mom and a friend to her and her friends and to know and appreciate her generation and their challenges. She will feel awkward about me saying these things since she is very modest but she truly has been a constant source of joy in my life. |
|---|
|
RJ is a very special and interesting man. Living with him and caring for him all these years has been a very challenging and enlightening but
amazing experience. | He has multiple handicapping conditions but for the first half of his life we only recognized Down's Syndrome (commonly associated with developmental delays or what we all used to call retardation) as his challenge. In reality that was the least pervasive condition he had to deal with. His Autism, internal seizures (we believe he has Landau Kleffner Syndrome) and Tourette's Syndrome (he is now non-verbal so we don't get the obscenities) have been far more difficult to cope with on a daily basis. Most recently his sleep disorders have become a very challenging factor in all our lives. RJ needs assistance with all daily activities; bathing, dressing, toileting, eating ect... and constant supervision. Greg and I provide this care. It has been virtually impossible to arrange for anyone else to come in and help (other than Lisa when she is home) for many years now. RJ likes to ride in the car, listen to music and make elaborate designs on the floor lining up colorful toys. He is ambulatory. He doesn't speak anymore (last words around 6 years old) but understands most of what is said to and around him. He has behavioral challenges as a result of his many frustrations and discomforts. I know this doesn't make RJ sound like a dream child, probably more like a nightmare but the other side of it all is that there isn't a more pure spirit anywhere. When RJ is inclined and can manage it, a hug from him is like a hug from heaven (pure love) and well worth the struggles. |
![]() This is RJ |
|---|---|
