All about My Transplant
I became a Type I insulin diabetic back in 1969 when I was 11 years old. Because
of that many years of being diabetic, I had high blood pressure, eye and nerve damage, and then kidney
failure. My insulin intake was a lot when I was diabetic. Taking about 3 shots a day, while testing my blood sugars
at least 3 times daily. The below photo was taken of me on the dialysis machine.
I started dialysis back in 1998. My nephrologist is Dr. William R. Smith. And I went to
Central Nephrology Clinic for 1 year and 10 days worth of dialysis before the tranplant. The below photo is where
I had my dialysis four hours every Tuesday,Thursday, and Saturdays.
During my hospital stay, The doctors had me on cellcapt ,
and I had several side effects from that antirejection medication, so they switched me
to a new drug called Rapamune. It first came in liquid form, but now it's in pill which is best for me.
When I left the hospital, my medications were 15 different. Now I am only taking 6 different including my
three antirejection medications which are Rapamune, Predisone, and Prograf.
The Diary of my Transplant
Monday, March 13. At 10:45 p.m., we got a call from Birmingham telling
us they had a kidney and a pancreas for me!!! In 45 minutes we had
packed and left, with my Aunt Jane drove us to Birmingham, Alabama.
Tuesday, March 14. We arrived at UAB by 3:30 a.m. They ran
some tests and Dr. Carlton Young operated , starting at 4:00 p.m. and
giving him both organs, and came to see us at 8:30 to tlet my relatives know I was
O.K. Calvin came and joined us. My folks visited me in the Surgical Intensive
Care Unit between 9:00 and 10:00 p.m. One thing I remember waking up was that I was shaking a lot, and
told the doctors that I was in an insuline reaction. Dr. Young was surprised that my new pancreas started to
work that soon. When I woke up there, I remember asking someone if I was in heaven, because I saw a beaufil blonde
nurse there!!!
Wednesday, March 15. My father stayed in the waiting room .
Thursday, March 16.I was moved into a room with someone else tonight.
And was terribly hungry, but couldn't eat anything!
Friday, March 17.I was moved into a private room Friday afternoon.
Friday, March 24. Dr. Young thought that I should stay at the
hospital at least till Monday, to try to get my medicines regulated. While my
creatinine is slowing going down, my blood sugar is getting higher than the doctor like.
They are giving me some insulin to help, which was disappointing for me.
Sunday, March 26. My church gave me a basket of snacks to enjoy.
Wednesday, March 29. The transplant is doing
pretty well. But heartbeat is irregular, and they are putting him on a blood
thinner to keep him from having a blood clot and a heart attack.
Thursday, March 30. My brother called to say hi. Mary Lowery Reeves
called. The risk of the blood thinner is that Chip may lose the kidney, which disappointed me.
Saturday, April 1. I got off the blood thinner, which should help preserve my
transplant.
Sunday, April 2.Things are doing a lot better.
The nurses station let me use their computer to check and send email.
Monday, April 3.My creatinine and blood
sugar are up, and they are afraid that there may be some signs of rejection.
Tuesday, April 4. The doctor came in this afternoon, and
said that the heart rythem is normal now. Dr. Young said that I will be off the
prograf until it's down. He thinks it's causing me to wobble and shake. I will
be on steroids until everything is normal. He said maybe soon I'll be out of
here.
Thursday,
April 6. This morning my weight dropped to 148 even. I was weighing
150.9 and the
woman doctor, April Johnson, said that it's due to the kidneys working.
My creatnine is staying at 2.7 which she told me may be my baseline.
That's been 3 days of 2.7. I walked good yesterday. I did about 4
times, and even went outside to get
some fresh air. But I am retaining fluid and showing signs of rejection
of the new kidney, They are putting a new graft in my neck and will
give me gamma globulin through the weekend,
then they will start all over again, as they did four weeks ago right
after my transplant surgery.
Saturday, April 8. This morning, I finally got on the computer. The
creatinine dropped from 2.6 to 2.3. My blood pressure and blood sugars are
normal. It sounds like we might move on Tuesday or Wednesday if the scan does
well, and that the white blood cells increase. The doctor said that I did 5
litres of urine during a 24 hour period. Below is a photo of me when I had dessert
on Easter Lunch at the hopsital.
Sunday, April 9. I got in my lab work
this morning, and the nurse said that my creatnine was 1.9!!! Down 4ths from
2.3. I hope to have my white blood count higher. We are waiting for the white blood cell count.
Maybe by Wednesday we might go to that townhouse!
Friday, April 14. They finally let me leave the hospital after lunch today,
and we moved into the Townhouse. Went shopping for groceries. We ate
at the hospital cafeteria. Below is a picture of the Townhouse where I stayed for a couple of weeks.
Saturday, April 15. This a.m. we went to the Russell Clinic to
get my blood checked, and then to breakfast; my numbers were good. My aunt Jane came to stay for
awhile.
Sunday, April 16. Visited my uncle at his place at Lake Weiss in Alabama for a day.
Went fishing.
Friday, April 21. After my last blood tests and session with the
doctor, I was allowed to leave, so we all left Birmingham after lunch and got
home this afternoon, after stopping to eat at my favorite Japanese restaurant: Little Tokyo II.
I have to go back for tests on Wednesday. Below is a picture of the Kirkland Clinic where I go
every year for annual followup.
Monday, April 24. The bills from the hospital came in. They were:
$177,877.96, with $489.16 estimated due from patient. Thank God for insurance and Medicare!