Well, last Tuesday I had my first appointment with my new Neurologist. I had to find a new one since the MDA Clinic Neurologist retired last April and they still haven't found anyone to replace him. During my visit I this new doctor told me that he will be the new MDA Clinic doctor. What a nice surprise! My appointment was just a yearly MD check up that ended with a few surprises. The first surprise is that I have to have a nerve test done at the end of this month. I'm really not looking forward to this. I had one done (attempted) once or twice as a child but it was never completed due to my screaming and crying. I hope I've overcome that by now. For more information on what a nerve test is visit this link........ http://www.bgsm.edu/neurology/department/diagneuro/emg_pncv.html . Also, this new doctor wants to start me on Creatine Therapy. Read more about Creatine here at various links.... http://www.mdausa.org/disease/ccd.html .....or enter "CREATINE" in the search box at .... http://www.mdausa.org/search/ .
It sounds interesting. The research proved to show that creatine therapy has made muscles in different forms of MD (one being CCD) stronger.
I've been taken off of Neurontin for a while to see if this is why I am so tired. I knew Neurontin caused drowsiness but it just didn't register with me. I will stay off Neurontin as long as possible and if I develop more energy then I will be placed on a different nerve medication that doesn't cause drowsiness. He wants to see me every six months rather than every year. I haven't had anyone offer to try treatments in years but maybe now medicine has advanced enough that treatments (no matter how small) are out there for us. No cure......just comfort .
All in all, I am in good health. Some areas have great strength and most areas have little strength (typical). I did get my lift chair. Oh! It has been a great help. So much easier for me to get up from sitting. I know many of you know how it is....you go to someones house or to a restaurant and you scan all of the seating to hopefully find that ONE seat that isn't too low for you to sit in. Well, now I have one seat that I know will always be "just right". |
