Ok, perhaps if I vent my frustrations here, I will keep my mouth shut every where else. I dont know if its just me, but being a military spouse, with a child with special needs has to be the hardest job in the world. Although I dont ever want to see my husband deployed, the fact is, he is a soldier, and that's what soldiers do. He and I plan for this nearly everyday of our life. Having a son with Duchenne's means that we must do things a little differently than most families, for example; most famillies tell there 11 year old son's to go take a bath/shower so that you will be ready for dinner/bedtime etc. In our house, we set our sons supplies up,(soap, shampoo, scrubby thingy, and towel, ) fix his water for him, undress him and then help him into the shower via kitchen chair, shower chair, or before he out grew it, wheelchair. Brandon slowly but surely works on washing his hair, and the rest of his body. When he's done, he hollars for us, and we get him out, dry him off, dress him, and assist him back into his wheelchair or to bed. Its actually pretty simple, however, if you know anything about Duchenne's, you know that as their muscles weaken, their needs and abilities change.

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Clark-Pinnacle has taken over the housing issues where we live. After much fighting and arguing with these people about my son's needs and how putting a ramp on a house does not qualify it to be handicap accessable, we reached an agreement (EMAIL ME IF YOU WANT THE WHOLE STORY) about changes that would be made so that our home, would be more compatible with my son. They were taking out a wall so that I can get his hoyer lift (45 inches wide) into the shower. They said this would take about 5 days to complete. Not a problem, as long as it is done before my husband deplays again. They jump on it, and Wednesday they work all day cutting a wall out, and saning the walls down etc. Thursday they come by from around 10am until around 2 pm. They tell me, we are going to lunch, and will be back later. Two of the workers come back at 430pm to get their tools, and then they leave. So today, we sat and waited until 12pm for them to show back up. When they didnt show by 12, we called our Clark represenative and asked if they would at least come by and put up a shower curtain or something so that my son can take a shower. After being talked to like we were a bunch of demading, ungrateful low-lives by Mr Phil Cowley ([email protected]), he stated that the crew working on our house is on there way right now (1230pm). I said, "OK, great. Tell them that all I really need them to do right now is fix up a shower curtain or someting so that my son can take a shower without flooding out the bathroom. It has been 3 days since he has had a shower because of the work." He said ok, and that was it. At 230pm, I still hadnt heard from "the crew". I spoke to MR Cowley again, and he says "you mean they havn't made it out there yet?" Of course they havnt you idiot, would I be calling you if they had? I told him to just tell them to not bother because I have wasted all day now waiting for them. Am I being rediculous? Look how they left his bathroom!