Lucky_allisonanne needs our help. Her daughter Danielle is suffering a disease called Mafan Syndrome. Danielle's spine was curved from this disease and had an operation to straighten it. The rods that were placed inside her back are now bent and she needs another operation. A second operation is very risky for her daughter, who is 13 and has 2 leaky valves and an enlarged aorta.

UPDATE: I received a IM from Allison this morning while I was waiting for her approval on this page.

The Marfan syndrome is a heritable disorder of the connective tissue that affects many organ systems, including the skeleton, lungs, eyes, heart and blood vessels. The condition affects both men and women of any race or ethnic group. It is estimated that at least 200,000 people in the United States have the Marfan syndrome or a related connective tissue disorder.

Skeletal manifestations common in people with the Marfan syndrome include curvature of the spine (scoliosis), abnormally shaped chest (pectus deformity), loose jointedness and disproportionate growth usually, but not always, resulting in tall stature.

National Marfan Foundation

Please use the Guest Book to share your prayers, wishes and thoughts with them.

Allison and Danielle can also use this Guest Book to keep us posted on their progress though this difficult time.