Duchenne Muscular Dystrophy Manual:
LINKS AND LITERATURE

This actually belongs all the way at the end, but no one is going to find it there. Also, if I leave working on it until the end, it will never get done. So here it is!

National Fundraising Organizations

For Americans, the first place to go to is
the USA Muscular Dystrophy Association

Another organization that can help you is the
Muscular Dystrophy Family Foundation

In Canada, go to
MDA of Canada

In Australia, go to
MDA of Australia

Parent Support Organizations


Duchenne Specific:

American parents' representative:
the Muscular Dystrophy Parent Project

There are other parents to talk with, and a lot of info at the
DMD Forum

Jim Gassen's site has a lot of parent insights:
DMD Options

Rich Clingman's site is very up to date: Living For Today
Visit especially his site devoted to Dr. Bach

Government Support Organizations:


Independent Living Centers can help your child work towards his independence. They can tell you where to get respite services, personal care assistants, and everything else to make it so not everything depends on just you. Find the center closest to you in this
list.

Research Organizations:


DMD Research Center

Other services:

Information and addresses for
assistance dogs.

Products:

The Coughlator can help a person with DMD cough up slime when he can't do it by himself anymore. That can keep his lungs clean, and that can be a major factor in preventing a tracheostomy. Here is a product page

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