P.O. Box 343, Cornwall, ON  K6J 5T1

[email protected]

www.autismontario.com/uppercanada

 


 

 

Autism Ontario is the leading source of information and referral on autism and one of the largest collective voices representing the autism community.  The 1,100 plus members of ASO represent all walks of life from rural to metropolitan communities and are connected through a volunteer network of chapters throughout the province of Ontario.

 

The mission of Autism Ontario is to promote lifelong access and opportunities for persons within the autism spectrum and their families, to be fully included, participating members of their communities. We try to provide information on available intervention options, rather than advocating for any one particular theory or philosophy.

 

The Upper Canada Chapter joined Autism Ontario in January 1999.  The chapter has operated for 9 years.  Our borders stretch from Quebec to Ottawa to Brockville.  We distribute information to over 70 families living in Cornwall and the surrounding counties of Stormont, Dundas, Glengarry, Leeds & Grenville.

 

Proceeds from fundraisers help the Upper Canada Chapter provide services to local families affected by autism, including family outreach and support, social learning opportunities, community and recreational programs, educational workshops for parents, and purchasing autism resources for local libraries.  These activities are organized by a limited number of parent volunteers.  We do not have paid staff or an office.

 

Chapter Accomplishments:

 

Fall 2008          Brought Florida based law enforcement trainer Dennis Debbaudt to Cornwall for his Autism Risk and Safety Management Workshop for parents and caregivers, and Autism Recognition, Response and Risk Management Training for Law Enforcement, Fire & Rescue Officers, and Emergency Medical Services.

 

Summer 2008   Partnered with Ontario Early Years Centre to equip the Autism & Special Needs Family Resource Centre room

 

Fall 2007          Started “Social Connections” social skills group

 

Fall 2006          Established Snoezelen Room at SD&G Developmental Services Respite Home

 

Fall 2005          Donated 100+ resources to Cornwall Public Library

 

Spring 2005      Organized and hosted the 2 day “What Now?! – A Symposium on Raising an Adolescent/Young Adult with an Autism Spectrum Disorder (ASD)

 

2000 - 2003      Created and operated  “Room to Grow”, a summer day camp specifically structured to meet the unique demands of children with ASD

 

1999 – 2008      Hosted 20+ workshops on various topics for parents, educators, developmental service workers, law enforcement personnel and other community professionals

 

1999 – 2003      Organized “Cycle for Autism” chapter fundraiser

 

 

Chapter Needs

 

Small office, equipped with desk, filing cabinets, book cases,  table & chairs, telephone, computer, printer/scanner/photocopier.

 

Partner with community agency to have an accessible venue with computer for teens and young adults to have supervised access to specialized software.

 

Partner with Cornwall Community Police and area OPP detachments, emergency responders and justice personnel to present “Autism & Law Enforcement Roll Call Briefing Video”.  Research indicates that persons with developmental disabilities, including a rapidly rising autism population, are approximately seven times more likely to come in contact with law enforcement professionals than others. Police and first response professionals will meet children and adults with autism in field situations.

 

 

Family Needs

 

·        Housing for low income families – currently the municipal housing 2 and 3 storey options are a safety concern

·        Housing options for individuals

·        Financial impact

·        Stress on families

 

 

“I am 22, and my husband is 26.  I'm on maternity leave while he makes a small income.  We have three children, all boys.  Our middle son, who just turned two in April has been diagnosed with Autism. It was such a shock when we found out.  I still cry everyday when I get so stressed out I just break down.

Since we've found out, we still have not seen a social worker, a developmental services representative, or even gotten to speak to anyone that can give us more information about what has been found out about our son. We're on waiting lists forever.

It is so hard to not have any options or support. I don't know what to do, I don't know what to do. My son can't tell me what’s wrong, if he's hungry, if he's hurt, if he's tired.   I can't even console or love him when he's sad, because I don't know.  We have not been able to even speak with anyone or see anyone that can tell us how severe his disease is and what we can do to help.”

 

… Parent from Morrisburg, August 2006

 

Our son will be turning 5 at the end of November.  He has already started school.  He was evaluated by and accepted into the Preschool Autism Program in March 2006.  We have now been told that he is on the waiting list and won’t receive services until September 2007.  We’ve been told that now is the most important time for him to be learning new skills, yet, we’re expected to accept this 1-1/2 year wait for services.

 

….Parent from Alexandria, September 2006

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